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ARTIGO ORIGINAL
Educational technology on COVID-19 for families of children and adolescents with sickle cell disease
- Patrícia Peres de Oliveira
, - Elaine Cristina Rodrigues Gesteira ,
- Rhillary Lorraine de Souza ,
- Nayara Cristine Protte de Paula ,
- Letícia Camilo Santos , [ ... ],
- Edilene Aparecida Araújo da Silveira
06-11-2021
Resumo
ARTIGO ORIGINALEducational technology on COVID-19 for families of children and adolescents with sickle cell disease
Revista Brasileira de Enfermagem. 2021;74(suppl 1):e20201045
06-11-2021DOI 10.1590/0034-7167-2020-1045
- Patrícia Peres de Oliveira ,
- Elaine Cristina Rodrigues Gesteira ,
- Rhillary Lorraine de Souza ,
- Nayara Cristine Protte de Paula ,
- Letícia Camilo Santos ,
- Walquíria Jesusmara dos Santos ,
- Edilene Aparecida Araújo da Silveira
Visualizações0ABSTRACT
Objective:
to construct and validate educational technology on COVID-19 and essential care for families of children/adolescents with sickle cell disease.
Methods:
this is a methodological study, in three stages: 1) elaborated educational technology, using the Doak, Doak and Root theoretical-methodological model; 2) content and appearance validation by the content validity coefficient. Delphi technique was applied in two rounds (Delphi I [12 judges]/Delphi II [11 judges]); 3) conducting a pilot test with six families.
Results:
“Sickle cell disease and COVID-19: essential care” included: consequences of COVID-19 in sickle cell disease, guidelines for reducing the risks of contracting the virus and having complications, signs and symptoms of COVID-19, guidelines in case of child/adolescent with suspicion or symptoms of COVID-19. Global content validity coefficient (Delphi II): 0.98.
Conclusion:
educational technology presented content and appearance validity for families of children/adolescents with sickle cell disease, related to COVID-19.
Palavras-chave: Anemia, Sickle CellCoronavirus InfectionsEducational TechnologyFamily NursingValidation StudiesVer maisVisualizações0
Resumo
ARTIGO ORIGINALEducational technology on COVID-19 for families of children and adolescents with sickle cell disease
Revista Brasileira de Enfermagem. 2021;74(suppl 1):e20201045
06-11-2021DOI 10.1590/0034-7167-2020-1045
- Patrícia Peres de Oliveira ,
- Elaine Cristina Rodrigues Gesteira ,
- Rhillary Lorraine de Souza ,
- Nayara Cristine Protte de Paula ,
- Letícia Camilo Santos ,
- Walquíria Jesusmara dos Santos ,
- Edilene Aparecida Araújo da Silveira
Visualizações0ABSTRACT
Objective:
to construct and validate educational technology on COVID-19 and essential care for families of children/adolescents with sickle cell disease.
Methods:
this is a methodological study, in three stages: 1) elaborated educational technology, using the Doak, Doak and Root theoretical-methodological model; 2) content and appearance validation by the content validity coefficient. Delphi technique was applied in two rounds (Delphi I [12 judges]/Delphi II [11 judges]); 3) conducting a pilot test with six families.
Results:
“Sickle cell disease and COVID-19: essential care” included: consequences of COVID-19 in sickle cell disease, guidelines for reducing the risks of contracting the virus and having complications, signs and symptoms of COVID-19, guidelines in case of child/adolescent with suspicion or symptoms of COVID-19. Global content validity coefficient (Delphi II): 0.98.
Conclusion:
educational technology presented content and appearance validity for families of children/adolescents with sickle cell disease, related to COVID-19.
Palavras-chave: Anemia, Sickle CellCoronavirus InfectionsEducational TechnologyFamily NursingValidation StudiesVer mais
- Patrícia Peres de Oliveira
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ORIGINAL ARTICLE
Family management ofchildren who experience sickle cell disease: a qualitative study
- Elaine Cristina Rodrigues Gesteira ,
- Regina Szylit ,
- Maiara Rodrigues dos Santos ,
- Carolliny Rossi de FariaIchikawa ,
- Patricia Peres de Oliveira , [ ... ],
- Edilene Aparecida Araújo Silveira
09-21-2020
Resumo
ORIGINAL ARTICLEFamily management ofchildren who experience sickle cell disease: a qualitative study
Revista Brasileira de Enfermagem. 2020;73(suppl 4):e20190521
09-21-2020DOI 10.1590/0034-7167-2019-0521
- Elaine Cristina Rodrigues Gesteira ,
- Regina Szylit ,
- Maiara Rodrigues dos Santos ,
- Carolliny Rossi de FariaIchikawa ,
- Patricia Peres de Oliveira ,
- Edilene Aparecida Araújo Silveira
Visualizações0Ver maisABSTRACT
Objective:
to know the family management experience of children with sickle cell disease in the light of the Family Management Style Framework.
Methods:
a qualitative case study carried out between September/2015 and July/2016 with 12 members of eight families registered in a blood center in Minas Gerais. The semi-structured interviews were recorded, and the data were analyzed and interpreted by the hybrid model thematic analysis.
Results:
three management styles were identified: five families in the accommodating style; two families in the struggling style; and only one family in the enduring style.It was noted that empowerment was paramount in the acquisition of skills and abilities to care for these children.
Final considerations:
family management knowledge of children with sickle cell disease provided a reflection on nurses’ role in supporting, orienting and encouraging the empowerment of these families aiming at the search for comprehensive care.
Visualizações0Resumo
ORIGINAL ARTICLEFamily management ofchildren who experience sickle cell disease: a qualitative study
Revista Brasileira de Enfermagem. 2020;73(suppl 4):e20190521
09-21-2020DOI 10.1590/0034-7167-2019-0521
- Elaine Cristina Rodrigues Gesteira ,
- Regina Szylit ,
- Maiara Rodrigues dos Santos ,
- Carolliny Rossi de FariaIchikawa ,
- Patricia Peres de Oliveira ,
- Edilene Aparecida Araújo Silveira
Visualizações0Ver maisABSTRACT
Objective:
to know the family management experience of children with sickle cell disease in the light of the Family Management Style Framework.
Methods:
a qualitative case study carried out between September/2015 and July/2016 with 12 members of eight families registered in a blood center in Minas Gerais. The semi-structured interviews were recorded, and the data were analyzed and interpreted by the hybrid model thematic analysis.
Results:
three management styles were identified: five families in the accommodating style; two families in the struggling style; and only one family in the enduring style.It was noted that empowerment was paramount in the acquisition of skills and abilities to care for these children.
Final considerations:
family management knowledge of children with sickle cell disease provided a reflection on nurses’ role in supporting, orienting and encouraging the empowerment of these families aiming at the search for comprehensive care.
- Elaine Cristina Rodrigues Gesteira
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ORIGINAL ARTICLE
“Waiting for a miracle”: Spirituality/Religiosity in coping with sickle cell disease
- Maiara Vitor Gomes ,
- Aline da Silva Gomes Xavier ,
- Evanilda Souza de Santana Carvalho ,
- Rosa Cândida Cordeiro ,
- Sílvia Lúcia Ferreira , [ ... ],
- Amarry Dantas Morbeck
10-21-2019
Resumo
ORIGINAL ARTICLE“Waiting for a miracle”: Spirituality/Religiosity in coping with sickle cell disease
Revista Brasileira de Enfermagem. 2019;72(6):1554-1561
10-21-2019DOI 10.1590/0034-7167-2018-0635
- Maiara Vitor Gomes ,
- Aline da Silva Gomes Xavier ,
- Evanilda Souza de Santana Carvalho ,
- Rosa Cândida Cordeiro ,
- Sílvia Lúcia Ferreira ,
- Amarry Dantas Morbeck
Visualizações0Ver maisABSTRACT
Objective:
To understand spirituality/religiosity as experienced by people with sickle cell disease, and its influence on coping with the disease.
Method:
A qualitative, descriptive, and exploratory study conducted in the State of Bahia. Twenty-nine respondents participated in semi-structured interviews. Content analysis was used to analyze the empirical material.
Results:
Individuals with sickle cell disease experience spirituality/religiosity motivated by their hope for a miracle, and fear of death; among their rites are: reading religious materials, individual and group prayer, and attendance at worship services. The effects on their health include: comfort by means of coping by comparing two evils, anxiety relief, social support, and lifestyle changes; however, spirituality/religiosity may be impaired.
Final considerations:
This study demonstrates the need to qualify health professionals to address spiritual issues of these individuals during illness, with the aims of diagnosing suffering and anguish, and providing care, comfort and strengthening of the spiritual bonds of these individuals.
Visualizações0Resumo
ORIGINAL ARTICLE“Waiting for a miracle”: Spirituality/Religiosity in coping with sickle cell disease
Revista Brasileira de Enfermagem. 2019;72(6):1554-1561
10-21-2019DOI 10.1590/0034-7167-2018-0635
- Maiara Vitor Gomes ,
- Aline da Silva Gomes Xavier ,
- Evanilda Souza de Santana Carvalho ,
- Rosa Cândida Cordeiro ,
- Sílvia Lúcia Ferreira ,
- Amarry Dantas Morbeck
Visualizações0Ver maisABSTRACT
Objective:
To understand spirituality/religiosity as experienced by people with sickle cell disease, and its influence on coping with the disease.
Method:
A qualitative, descriptive, and exploratory study conducted in the State of Bahia. Twenty-nine respondents participated in semi-structured interviews. Content analysis was used to analyze the empirical material.
Results:
Individuals with sickle cell disease experience spirituality/religiosity motivated by their hope for a miracle, and fear of death; among their rites are: reading religious materials, individual and group prayer, and attendance at worship services. The effects on their health include: comfort by means of coping by comparing two evils, anxiety relief, social support, and lifestyle changes; however, spirituality/religiosity may be impaired.
Final considerations:
This study demonstrates the need to qualify health professionals to address spiritual issues of these individuals during illness, with the aims of diagnosing suffering and anguish, and providing care, comfort and strengthening of the spiritual bonds of these individuals.
- Maiara Vitor Gomes
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RESEARCH
Importance of health guidance for family members of children with sickle cell disease
Revista Brasileira de Enfermagem. 2018;71(6):2974-2982
01-01-2018
Resumo
RESEARCHImportance of health guidance for family members of children with sickle cell disease
Revista Brasileira de Enfermagem. 2018;71(6):2974-2982
01-01-2018DOI 10.1590/0034-7167-2017-0806
Visualizações0Ver maisABSTRACT
Objective:
To know the main health guidance needs of family members of children with sickle cell disease.
Method:
Qualitative research, developed in a pediatric reference hospital of Ceará State, between April and May 2017, through the participation of 12 family members of children with sickle cell disease. The data were collected through semi-structured interviewees and analyzed according to the Bardin’s Thematic Categorical Analysis.
Results:
The relatives had divergent opinions about what this pathology would be and expressed the expectation of being broadly guided, from general information (signs and symptoms) to more complex ones about the disease, including major complications and ways of preventing them.
Final considerations:
The health fragility due to the punctual and/or meager guidance provided to family members reflects the importance of increasing knowledge and clarifying doubts of these relatives about the disease, which makes it urgent to develop health education strategies by multiprofessional teams.
Visualizações0Resumo
RESEARCHImportance of health guidance for family members of children with sickle cell disease
Revista Brasileira de Enfermagem. 2018;71(6):2974-2982
01-01-2018DOI 10.1590/0034-7167-2017-0806
Visualizações0Ver maisABSTRACT
Objective:
To know the main health guidance needs of family members of children with sickle cell disease.
Method:
Qualitative research, developed in a pediatric reference hospital of Ceará State, between April and May 2017, through the participation of 12 family members of children with sickle cell disease. The data were collected through semi-structured interviewees and analyzed according to the Bardin’s Thematic Categorical Analysis.
Results:
The relatives had divergent opinions about what this pathology would be and expressed the expectation of being broadly guided, from general information (signs and symptoms) to more complex ones about the disease, including major complications and ways of preventing them.
Final considerations:
The health fragility due to the punctual and/or meager guidance provided to family members reflects the importance of increasing knowledge and clarifying doubts of these relatives about the disease, which makes it urgent to develop health education strategies by multiprofessional teams.
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RESEARCH
The pain of children with sickle cell disease: the nursing approach
Revista Brasileira de Enfermagem. 2018;71(suppl 3):1381-1387
01-01-2018
Resumo
RESEARCHThe pain of children with sickle cell disease: the nursing approach
Revista Brasileira de Enfermagem. 2018;71(suppl 3):1381-1387
01-01-2018DOI 10.1590/0034-7167-2016-0648
Visualizações0Ver maisABSTRACT
Objective:
To describe how nurses identify the pain in children with sickle cell disease (SCD) and to list the strategies used by them in the evaluation and control of pain.
Method:
This is a qualitative, descriptive and exploratory research, performed through semi-structured interviews with 13 nurses. The interviews were transcribed and after this process the qualitative data were organized according to thematic analysis.
Results:
This study showed that the nurses can identify pain in children with SCD from the signals they emit, such as: constant crying, restlessness, facial expressions and verbal reports. Pain is difficult to evaluate due to the lack of instruments, such as a pain scale. For pain control they use emotional support, promotion of comfort and the administration of drugs prescribed by the doctor.
Final considerations:
The nurses recognize the pain of the child and use pharmacological and non-pharmacological methods to control it but have difficulties to assess it.
Visualizações0Resumo
RESEARCHThe pain of children with sickle cell disease: the nursing approach
Revista Brasileira de Enfermagem. 2018;71(suppl 3):1381-1387
01-01-2018DOI 10.1590/0034-7167-2016-0648
Visualizações0Ver maisABSTRACT
Objective:
To describe how nurses identify the pain in children with sickle cell disease (SCD) and to list the strategies used by them in the evaluation and control of pain.
Method:
This is a qualitative, descriptive and exploratory research, performed through semi-structured interviews with 13 nurses. The interviews were transcribed and after this process the qualitative data were organized according to thematic analysis.
Results:
This study showed that the nurses can identify pain in children with SCD from the signals they emit, such as: constant crying, restlessness, facial expressions and verbal reports. Pain is difficult to evaluate due to the lack of instruments, such as a pain scale. For pain control they use emotional support, promotion of comfort and the administration of drugs prescribed by the doctor.
Final considerations:
The nurses recognize the pain of the child and use pharmacological and non-pharmacological methods to control it but have difficulties to assess it.
Anemia, Sickle Cell Archives - Revista Brasileira de Enfermagem
