-
ORIGINAL ARTICLE12-04-2023
A longitudinal study of burden among spouse and non-spouse caregivers of older adults with stroke-induced-dependency
- Carolina Baltar Day
, - Carla Cristiane Becker Kottwitz Bierhals ,
- Fernanda Laís Fengler Dal Pizzol ,
- Gail Low ,
- Naiana Oliveira dos Santos , [ ... ],
- Lisiane Manganelli Girardi Paskulin
Abstract
ORIGINAL ARTICLEA longitudinal study of burden among spouse and non-spouse caregivers of older adults with stroke-induced-dependency
Revista Brasileira de Enfermagem. 2023;76(6):e20230052
DOI 10.1590/0034-7167-2023-0052
- Carolina Baltar Day ,
- Carla Cristiane Becker Kottwitz Bierhals ,
- Fernanda Laís Fengler Dal Pizzol ,
- Gail Low ,
- Naiana Oliveira dos Santos ,
- Lisiane Manganelli Girardi Paskulin
Views0See moreABSTRACT
Objective:
to assess the burden of spouse and non-spouse caregivers of older adults with stroke-induced-dependency after discharge from a university hospital’s Specialized Care Stroke Unit in southern Brazil.
Methods:
a longitudinal survey. The sample consisted of 48 consenting caregivers, among which 20 were spouse caregivers. Data were collected between May 2016 and July 2018. One week after discharge, caregivers completed a sociodemographic profile, the Functional Independence Measure, and the Caregiver Burden Scale. Burden was also measured two months after discharge. Data were analyzed using Multivariate Analyses of Variance.
Results:
regarding time 1, non-spouse caregivers experienced greater burden with respect to social isolation (p = .01). Along with a persistently greater sense of isolation (p=.04), non-spouse caregivers felt far greater general strain (p =.01).
Conclusion:
statistically significant differences in burden over time highlight the importance of assessing caregiver burden after discharge and the need for a formal support program.
Views0
Abstract
ORIGINAL ARTICLEA longitudinal study of burden among spouse and non-spouse caregivers of older adults with stroke-induced-dependency
Revista Brasileira de Enfermagem. 2023;76(6):e20230052
DOI 10.1590/0034-7167-2023-0052
- Carolina Baltar Day ,
- Carla Cristiane Becker Kottwitz Bierhals ,
- Fernanda Laís Fengler Dal Pizzol ,
- Gail Low ,
- Naiana Oliveira dos Santos ,
- Lisiane Manganelli Girardi Paskulin
Views0See moreABSTRACT
Objective:
to assess the burden of spouse and non-spouse caregivers of older adults with stroke-induced-dependency after discharge from a university hospital’s Specialized Care Stroke Unit in southern Brazil.
Methods:
a longitudinal survey. The sample consisted of 48 consenting caregivers, among which 20 were spouse caregivers. Data were collected between May 2016 and July 2018. One week after discharge, caregivers completed a sociodemographic profile, the Functional Independence Measure, and the Caregiver Burden Scale. Burden was also measured two months after discharge. Data were analyzed using Multivariate Analyses of Variance.
Results:
regarding time 1, non-spouse caregivers experienced greater burden with respect to social isolation (p = .01). Along with a persistently greater sense of isolation (p=.04), non-spouse caregivers felt far greater general strain (p =.01).
Conclusion:
statistically significant differences in burden over time highlight the importance of assessing caregiver burden after discharge and the need for a formal support program.
- Carolina Baltar Day
-
ORIGINAL ARTICLE10-24-2022
Factors associated with symptoms of physical and emotional burden in informal caregivers of the elderly
- Leandro Corrêa Figueiredo ,
- Gustavo Carrijo Barbosa ,
- Diana Quirino Monteiro ,
- Gabriela Martins ,
- Adrielli Fernanda de Oliveira e Silva , [ ... ],
- Aline Cristina Martins Gratão
Abstract
ORIGINAL ARTICLEFactors associated with symptoms of physical and emotional burden in informal caregivers of the elderly
Revista Brasileira de Enfermagem. 2022;75:e20210927
DOI 10.1590/0034-7167-2021-0927
- Leandro Corrêa Figueiredo ,
- Gustavo Carrijo Barbosa ,
- Diana Quirino Monteiro ,
- Gabriela Martins ,
- Adrielli Fernanda de Oliveira e Silva ,
- Luana Flávia Talmelli Ruy ,
- Tatiana de Oliveira Sato ,
- Aline Cristina Martins Gratão
Views1See moreABSTRACT
Objectives:
to analyze the personal and work-related burden factors associated with physical and emotional symptoms of informal caregivers of the elderly.
Methods:
cross-sectional study conducted with 121 informal caregivers and 121 seniors who received care, assessed individually for the risk of: physical overload, musculoskeletal symptoms, Self-Reporting Questionnaire, effort perception, and Katz index.
Results:
a greater perception of effort raises up to 3.3 times the chances of presenting symptoms of pain in the spine region (p=0.01), and lower functional capacity of the elderly increases up to 1.3 times the chances of presenting pain symptoms in the spine region (p=0.02). The symptoms of emotional overload were associated with the caregiver’s low income (p=0.02).
Conclusions:
the perception of effort, dependence of the elderly, caregiver’s age, and symptoms of emotional overload are involved with caregivers’ symptoms of physical overload, and low income, with emotional overload.
Views1Abstract
ORIGINAL ARTICLEFactors associated with symptoms of physical and emotional burden in informal caregivers of the elderly
Revista Brasileira de Enfermagem. 2022;75:e20210927
DOI 10.1590/0034-7167-2021-0927
- Leandro Corrêa Figueiredo ,
- Gustavo Carrijo Barbosa ,
- Diana Quirino Monteiro ,
- Gabriela Martins ,
- Adrielli Fernanda de Oliveira e Silva ,
- Luana Flávia Talmelli Ruy ,
- Tatiana de Oliveira Sato ,
- Aline Cristina Martins Gratão
Views1See moreABSTRACT
Objectives:
to analyze the personal and work-related burden factors associated with physical and emotional symptoms of informal caregivers of the elderly.
Methods:
cross-sectional study conducted with 121 informal caregivers and 121 seniors who received care, assessed individually for the risk of: physical overload, musculoskeletal symptoms, Self-Reporting Questionnaire, effort perception, and Katz index.
Results:
a greater perception of effort raises up to 3.3 times the chances of presenting symptoms of pain in the spine region (p=0.01), and lower functional capacity of the elderly increases up to 1.3 times the chances of presenting pain symptoms in the spine region (p=0.02). The symptoms of emotional overload were associated with the caregiver’s low income (p=0.02).
Conclusions:
the perception of effort, dependence of the elderly, caregiver’s age, and symptoms of emotional overload are involved with caregivers’ symptoms of physical overload, and low income, with emotional overload.
- Leandro Corrêa Figueiredo
-
ORIGINAL ARTICLE10-01-2022
Musculoskeletal symptoms in formal and informal caregivers of elderly people
- Leandro Corrêa Figueiredo ,
- Aline Cristina Martins Gratão ,
- Gustavo Carrijo Barbosa ,
- Diana Quirino Monteiro ,
- Beatriz Rodrigues de Souza Melo , [ ... ],
- Tatiana de Oliveira Sato
Abstract
ORIGINAL ARTICLEMusculoskeletal symptoms in formal and informal caregivers of elderly people
Revista Brasileira de Enfermagem. 2022;75(2):e20210249
DOI 10.1590/0034-7167-2021-0249
- Leandro Corrêa Figueiredo ,
- Aline Cristina Martins Gratão ,
- Gustavo Carrijo Barbosa ,
- Diana Quirino Monteiro ,
- Beatriz Rodrigues de Souza Melo ,
- Lucas Nogueira de Carvalho Pelegrini ,
- Tatiana de Oliveira Sato
Views0See moreABSTRACT
Objective:
to evaluate musculoskeletal symptoms in formal and informal caregivers of elderly people, and check association with personal and work-related factors.
Methods:
this is a cross-sectional study. Instruments for assessment were the International Physical Activity Questionnaire, Self-Reporting Questionnaire-20, Borg’s effort perception scale and Nordic Musculoskeletal Questionnaire.
Results:
informal caregivers had been working for a longer time (60.2% vs. 41%), had more hours of work (37.4% >12h for day), less time off (85.4% vs. 2.5%) and lack of care guidelines (90.2%). The region with the most musculoskeletal symptoms was the spine and the greater dependence of the elderly, the greater the chances of developing musculoskeletal symptoms (OR= 1.3, 95% CI= 1.1-1.6, p <0.05).
Conclusion:
personal and work-related factors were more prevalent in informal group and the elderly person’s dependence interferes with the increase in musculoskeletal symptoms of caregivers.
Views0Abstract
ORIGINAL ARTICLEMusculoskeletal symptoms in formal and informal caregivers of elderly people
Revista Brasileira de Enfermagem. 2022;75(2):e20210249
DOI 10.1590/0034-7167-2021-0249
- Leandro Corrêa Figueiredo ,
- Aline Cristina Martins Gratão ,
- Gustavo Carrijo Barbosa ,
- Diana Quirino Monteiro ,
- Beatriz Rodrigues de Souza Melo ,
- Lucas Nogueira de Carvalho Pelegrini ,
- Tatiana de Oliveira Sato
Views0See moreABSTRACT
Objective:
to evaluate musculoskeletal symptoms in formal and informal caregivers of elderly people, and check association with personal and work-related factors.
Methods:
this is a cross-sectional study. Instruments for assessment were the International Physical Activity Questionnaire, Self-Reporting Questionnaire-20, Borg’s effort perception scale and Nordic Musculoskeletal Questionnaire.
Results:
informal caregivers had been working for a longer time (60.2% vs. 41%), had more hours of work (37.4% >12h for day), less time off (85.4% vs. 2.5%) and lack of care guidelines (90.2%). The region with the most musculoskeletal symptoms was the spine and the greater dependence of the elderly, the greater the chances of developing musculoskeletal symptoms (OR= 1.3, 95% CI= 1.1-1.6, p <0.05).
Conclusion:
personal and work-related factors were more prevalent in informal group and the elderly person’s dependence interferes with the increase in musculoskeletal symptoms of caregivers.
- Leandro Corrêa Figueiredo
-
05-21-2021
Influence of chronic pain on cognitive performance in elderly caregivers: a longitudinal study
Revista Brasileira de Enfermagem. 2021;74:e20200412
Abstract
Influence of chronic pain on cognitive performance in elderly caregivers: a longitudinal study
Revista Brasileira de Enfermagem. 2021;74:e20200412
DOI 10.1590/0034-7167-2020-0412
Views0See moreABSTRACT
Objective:
to compare cognitive performance of elderly caregivers with and without chronic pain over four years and verify the effect of pain intensity on cognitive performance of elderly caregivers with chronic pain.
Method:
a longitudinal study with data collected in 2014 and 2018. Community-dwelling elderly caregivers of a Brazilian city participated in the study. Cognition was assessed using the Addenbrooke’s Cognitive Examination instrument. Pain was assessed by an 11-point scale. For data analysis, a mixed linear model and ANCOVA with a 5% significance level were used.
Results:
they were divided into two groups. A cognitive decline over four years was found in elderly people with pain (p=0.02; 95%CI=0.32-4.25), while those without pain did not show a significant change.
Conclusion:
the results show that elderly caregivers with pain had a worse cognitive performance, but when comparing groups with the ANCOVA test for intergroup analysis, there was no difference in cognitive performance.
Views0Abstract
Influence of chronic pain on cognitive performance in elderly caregivers: a longitudinal study
Revista Brasileira de Enfermagem. 2021;74:e20200412
DOI 10.1590/0034-7167-2020-0412
Views0See moreABSTRACT
Objective:
to compare cognitive performance of elderly caregivers with and without chronic pain over four years and verify the effect of pain intensity on cognitive performance of elderly caregivers with chronic pain.
Method:
a longitudinal study with data collected in 2014 and 2018. Community-dwelling elderly caregivers of a Brazilian city participated in the study. Cognition was assessed using the Addenbrooke’s Cognitive Examination instrument. Pain was assessed by an 11-point scale. For data analysis, a mixed linear model and ANCOVA with a 5% significance level were used.
Results:
they were divided into two groups. A cognitive decline over four years was found in elderly people with pain (p=0.02; 95%CI=0.32-4.25), while those without pain did not show a significant change.
Conclusion:
the results show that elderly caregivers with pain had a worse cognitive performance, but when comparing groups with the ANCOVA test for intergroup analysis, there was no difference in cognitive performance.
-
02-12-2021
Association between perceived social support and better cognitive performance among caregivers and non-caregivers
- Sofia Cristina Iost Pavarini ,
- Ana Carolina Ottaviani ,
- Allan Gustavo Bregola ,
- Francisco J. Fraga ,
- Marcos Hortes Nisihara Chagas , [ ... ],
- Tábatta Renata Pereira de Brito
Abstract
Association between perceived social support and better cognitive performance among caregivers and non-caregivers
Revista Brasileira de Enfermagem. 2021;74:e20200329
DOI 10.1590/0034-7167-2020-0329
- Sofia Cristina Iost Pavarini ,
- Ana Carolina Ottaviani ,
- Allan Gustavo Bregola ,
- Francisco J. Fraga ,
- Marcos Hortes Nisihara Chagas ,
- Nathalia Alves de Oliveira ,
- Tábatta Renata Pereira de Brito
Views0See moreABSTRACT
Objective:
to identify the association between the characteristics of the support network and cognitive performance of older caregivers and compare characteristics between caregivers and non-caregivers.
Methods:
we evaluated 85 older caregivers and 84 older non-caregivers registered with primary care units regarding sociodemographic characteristics, cognition, and social support. Multiple linear regression analysis was performed.
Results:
among non-caregivers, significant associations were found between a better cognitive performance and receiving emotional/affectionate support; each one-point increase in the emotional support score and affectionate support score was related to a 0.43-point and 0.39-point increase in cognitive assessment, respectively. Among older caregivers, each one-point increase in the emotional support score was related to a 0.55-point increase in cognitive assessment.
Conclusion:
strengthening the support networks of older caregivers and encouraging satisfactory exchanges of social support can assist in improving cognitive performance, which can have a positive impact on caregivers’ health.
Views0Abstract
Association between perceived social support and better cognitive performance among caregivers and non-caregivers
Revista Brasileira de Enfermagem. 2021;74:e20200329
DOI 10.1590/0034-7167-2020-0329
- Sofia Cristina Iost Pavarini ,
- Ana Carolina Ottaviani ,
- Allan Gustavo Bregola ,
- Francisco J. Fraga ,
- Marcos Hortes Nisihara Chagas ,
- Nathalia Alves de Oliveira ,
- Tábatta Renata Pereira de Brito
Views0See moreABSTRACT
Objective:
to identify the association between the characteristics of the support network and cognitive performance of older caregivers and compare characteristics between caregivers and non-caregivers.
Methods:
we evaluated 85 older caregivers and 84 older non-caregivers registered with primary care units regarding sociodemographic characteristics, cognition, and social support. Multiple linear regression analysis was performed.
Results:
among non-caregivers, significant associations were found between a better cognitive performance and receiving emotional/affectionate support; each one-point increase in the emotional support score and affectionate support score was related to a 0.43-point and 0.39-point increase in cognitive assessment, respectively. Among older caregivers, each one-point increase in the emotional support score was related to a 0.55-point increase in cognitive assessment.
Conclusion:
strengthening the support networks of older caregivers and encouraging satisfactory exchanges of social support can assist in improving cognitive performance, which can have a positive impact on caregivers’ health.
- Sofia Cristina Iost Pavarini
-
EXPERIENCE REPORT11-16-2020
Help2care: ehealth strategies for self care of users and caregivers based on Nightingale’s work
Revista Brasileira de Enfermagem. 2020;73:e20200358
Abstract
EXPERIENCE REPORTHelp2care: ehealth strategies for self care of users and caregivers based on Nightingale’s work
Revista Brasileira de Enfermagem. 2020;73:e20200358
DOI 10.1590/0034-7167-2020-0358
Views0See moreABSTRACT
Objective:
To report the experience of design and implementation of the Help2Care (an ehealth program that aims to support informal caregivers of dependent people); and to identify its structure and functionality.
Methods:
This is a Portuguese experience report about Help2Care, a practice-based action research project carried out between 2017 and 2019, having as a guiding axis Florence Nightingale’s concepts about the relevance of the home-care environment.
Results:
The Help2Care program revealed itself to be a valuable support tool for providing better healthcare learning, counselling, and assistance of the informal caregivers of dependent people. Different ehealth strategies were used to empower caregivers in self-care in order to have a safe transition between contexts of care at the time of patient discharge.
Conclusion:
Help2Care allows to inspire other ways of providing care, as well as a reduction in the readmission rate in health organizations for patients who reveal poor care support in home environments.
Views0Abstract
EXPERIENCE REPORTHelp2care: ehealth strategies for self care of users and caregivers based on Nightingale’s work
Revista Brasileira de Enfermagem. 2020;73:e20200358
DOI 10.1590/0034-7167-2020-0358
Views0See moreABSTRACT
Objective:
To report the experience of design and implementation of the Help2Care (an ehealth program that aims to support informal caregivers of dependent people); and to identify its structure and functionality.
Methods:
This is a Portuguese experience report about Help2Care, a practice-based action research project carried out between 2017 and 2019, having as a guiding axis Florence Nightingale’s concepts about the relevance of the home-care environment.
Results:
The Help2Care program revealed itself to be a valuable support tool for providing better healthcare learning, counselling, and assistance of the informal caregivers of dependent people. Different ehealth strategies were used to empower caregivers in self-care in order to have a safe transition between contexts of care at the time of patient discharge.
Conclusion:
Help2Care allows to inspire other ways of providing care, as well as a reduction in the readmission rate in health organizations for patients who reveal poor care support in home environments.
-
ORIGINAL ARTICLE12-05-2019
Relationship between elderly stroke patient caregivers scale and nursing diagnoses
- Fernanda Laís Fengler Dal Pizzol ,
- Laura Fonseca Vieira ,
- Carla Cristiane Becker Kottwitz Bierhals ,
- Karina de Oliveira Azzolin ,
- Lisiane Manganelli Girardi Paskulin , [ ... ],
- Amália de Fátima Lucena
Abstract
ORIGINAL ARTICLERelationship between elderly stroke patient caregivers scale and nursing diagnoses
Revista Brasileira de Enfermagem. 2019;72:251-258
DOI 10.1590/0034-7167-2018-0787
- Fernanda Laís Fengler Dal Pizzol ,
- Laura Fonseca Vieira ,
- Carla Cristiane Becker Kottwitz Bierhals ,
- Karina de Oliveira Azzolin ,
- Lisiane Manganelli Girardi Paskulin ,
- Gail Low ,
- Ninon Girardon da Rosa ,
- Amália de Fátima Lucena
Views0See moreABSTRACT
Objective:
To describe relationships between the ECPICID-AVC scale factors and the NANDA-I domains, classes, and Nursing Diagnoses (NDs).
Method:
Cross-mapping study between the NANDA-I taxonomy and ECPICID-AVC scale was constructed based on the eight ECPICID-AVC scale factors and the 13 NANDA-I domains. A descriptive analysis was performed to present the mapped elements.
Results:
Areas of similarity and intersection were found between the eight ECPICID-AVC factors and nine NANDA-I domains, 19 classes, and 72 NDs. All scale factors were mapped with the Domain 1/Health Promotion, Class 2/Health Management and the ND “Frail elderly syndrome”.
Final considerations:
The ECPICID-AVC scale factors were mapped with nine domains, their classes and diagnoses. This study demonstrates the importance of identifying nursing diagnoses and their relationship with factors that evaluate caregiving capacity. The ECPICID-AVC can help nurses generate nursing diagnoses regarding the caregiver’s needs and their capacities related to care to focus such needs.
Views0Abstract
ORIGINAL ARTICLERelationship between elderly stroke patient caregivers scale and nursing diagnoses
Revista Brasileira de Enfermagem. 2019;72:251-258
DOI 10.1590/0034-7167-2018-0787
- Fernanda Laís Fengler Dal Pizzol ,
- Laura Fonseca Vieira ,
- Carla Cristiane Becker Kottwitz Bierhals ,
- Karina de Oliveira Azzolin ,
- Lisiane Manganelli Girardi Paskulin ,
- Gail Low ,
- Ninon Girardon da Rosa ,
- Amália de Fátima Lucena
Views0See moreABSTRACT
Objective:
To describe relationships between the ECPICID-AVC scale factors and the NANDA-I domains, classes, and Nursing Diagnoses (NDs).
Method:
Cross-mapping study between the NANDA-I taxonomy and ECPICID-AVC scale was constructed based on the eight ECPICID-AVC scale factors and the 13 NANDA-I domains. A descriptive analysis was performed to present the mapped elements.
Results:
Areas of similarity and intersection were found between the eight ECPICID-AVC factors and nine NANDA-I domains, 19 classes, and 72 NDs. All scale factors were mapped with the Domain 1/Health Promotion, Class 2/Health Management and the ND “Frail elderly syndrome”.
Final considerations:
The ECPICID-AVC scale factors were mapped with nine domains, their classes and diagnoses. This study demonstrates the importance of identifying nursing diagnoses and their relationship with factors that evaluate caregiving capacity. The ECPICID-AVC can help nurses generate nursing diagnoses regarding the caregiver’s needs and their capacities related to care to focus such needs.
- Fernanda Laís Fengler Dal Pizzol
-
ORIGINAL ARTICLE01-01-2019
Active Life: a project for a safe hospital-community transition after arthroplasty
- Edite Maria Ferreira ,
- Otília Mendes Lourenço ,
- Paula Vasques da Costa ,
- Sónia Cristina Pinto ,
- Cidália Gomes , [ ... ],
- Cristina Lavareda Baixinho
Abstract
ORIGINAL ARTICLEActive Life: a project for a safe hospital-community transition after arthroplasty
Revista Brasileira de Enfermagem. 2019;72(1):147-153
DOI 10.1590/0034-7167-2018-0615
- Edite Maria Ferreira ,
- Otília Mendes Lourenço ,
- Paula Vasques da Costa ,
- Sónia Cristina Pinto ,
- Cidália Gomes ,
- Ana Paula Oliveira ,
- Óscar Ferreira ,
- Cristina Lavareda Baixinho
Views0See moreABSTRACT
Objective:
To define the criteria for the continuity of care to elderly people submitted to arthroplasty.
Method:
This is a qualitative study, inserted in the constructivist paradigm, whose methodological option fell on research-action. The participants were the health professionals of an orthopedic service and of the community care teams in the area of the hospital.
Results:
The different techniques allowed us to identify the difficulties in the safe transition from the hospital to the community. At this level, two categories of criteria for continuity of care emerged: criteria associated with the risk of ineffective management of the therapeutic regimen, and criteria associated with the knowledge and level of competence of the informal caregiver.
Final Considerations:
An elderly person undergoing arthroplasty (hip or knee) has functional alterations that affect their capacity for self-care and may lead to dependence, our findings allowed the design of an algorithm to facilitate clinical decision making and promote a safe hospital-community transition.
Views0Abstract
ORIGINAL ARTICLEActive Life: a project for a safe hospital-community transition after arthroplasty
Revista Brasileira de Enfermagem. 2019;72(1):147-153
DOI 10.1590/0034-7167-2018-0615
- Edite Maria Ferreira ,
- Otília Mendes Lourenço ,
- Paula Vasques da Costa ,
- Sónia Cristina Pinto ,
- Cidália Gomes ,
- Ana Paula Oliveira ,
- Óscar Ferreira ,
- Cristina Lavareda Baixinho
Views0See moreABSTRACT
Objective:
To define the criteria for the continuity of care to elderly people submitted to arthroplasty.
Method:
This is a qualitative study, inserted in the constructivist paradigm, whose methodological option fell on research-action. The participants were the health professionals of an orthopedic service and of the community care teams in the area of the hospital.
Results:
The different techniques allowed us to identify the difficulties in the safe transition from the hospital to the community. At this level, two categories of criteria for continuity of care emerged: criteria associated with the risk of ineffective management of the therapeutic regimen, and criteria associated with the knowledge and level of competence of the informal caregiver.
Final Considerations:
An elderly person undergoing arthroplasty (hip or knee) has functional alterations that affect their capacity for self-care and may lead to dependence, our findings allowed the design of an algorithm to facilitate clinical decision making and promote a safe hospital-community transition.
- Edite Maria Ferreira
Caregivers Archives - Revista Brasileira de Enfermagem
