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ORIGINAL ARTICLE
Experiences of family members of children with cystic fibrosis under the light of Callista Roy
- Thaís Cristina Flexa Souza
, - Antônio Jorge Silva Correa Júnior ,
- Mary Elizabeth de Santana ,
- Ingrid Magali de Souza Pimentel ,
- Jacira Nunes Carvalho
09-21-2020
Resumo
ORIGINAL ARTICLEExperiences of family members of children with cystic fibrosis under the light of Callista Roy
Revista Brasileira de Enfermagem. 2020;73(suppl 4):e20190662
09-21-2020DOI 10.1590/0034-7167-2019-0662
- Thaís Cristina Flexa Souza ,
- Antônio Jorge Silva Correa Júnior ,
- Mary Elizabeth de Santana ,
- Ingrid Magali de Souza Pimentel ,
- Jacira Nunes Carvalho
Visualizações0Ver maisABSTRACT
Objective:
To know the experiences of family members of children with cystic fibrosis under the light of the theory of Callista Roy.
Method:
Qualitative research that used the adaptation theoretical framework of Callista Roy for inductive content analysis. Fifteen family members, in a university hospital, between 23 and 63 years old, participated in the study, from September to October 2018.
Results:
Two categories were elaborated: “Evaluation of stimuli” and “Evaluation of behaviors”. The first has three subcategories: “focal”, “contextual” and “residual”. And the second, four subcategories: “physiological domain”, “self-concept”, “role function” and “interdependence”.
Final Considerations:
During the evaluation of stimuli, work overload and stress were identified as focal stimuli. Regarding contextual stimuli, it was noticed that the social life of caregivers was prejudiced. As for residual stimuli, the fear of loss is constant, and it appears that the emotional aspect of family members is the most affected comparing with physical exhaustion.
Visualizações0
Resumo
ORIGINAL ARTICLEExperiences of family members of children with cystic fibrosis under the light of Callista Roy
Revista Brasileira de Enfermagem. 2020;73(suppl 4):e20190662
09-21-2020DOI 10.1590/0034-7167-2019-0662
- Thaís Cristina Flexa Souza ,
- Antônio Jorge Silva Correa Júnior ,
- Mary Elizabeth de Santana ,
- Ingrid Magali de Souza Pimentel ,
- Jacira Nunes Carvalho
Visualizações0Ver maisABSTRACT
Objective:
To know the experiences of family members of children with cystic fibrosis under the light of the theory of Callista Roy.
Method:
Qualitative research that used the adaptation theoretical framework of Callista Roy for inductive content analysis. Fifteen family members, in a university hospital, between 23 and 63 years old, participated in the study, from September to October 2018.
Results:
Two categories were elaborated: “Evaluation of stimuli” and “Evaluation of behaviors”. The first has three subcategories: “focal”, “contextual” and “residual”. And the second, four subcategories: “physiological domain”, “self-concept”, “role function” and “interdependence”.
Final Considerations:
During the evaluation of stimuli, work overload and stress were identified as focal stimuli. Regarding contextual stimuli, it was noticed that the social life of caregivers was prejudiced. As for residual stimuli, the fear of loss is constant, and it appears that the emotional aspect of family members is the most affected comparing with physical exhaustion.
- Thaís Cristina Flexa Souza
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RESEARCH
Experience of adults with cystic fibrosis: a perspective based on social phenomenology
Revista Brasileira de Enfermagem. 2018;71(6):2891-2898
01-01-2018
Resumo
RESEARCHExperience of adults with cystic fibrosis: a perspective based on social phenomenology
Revista Brasileira de Enfermagem. 2018;71(6):2891-2898
01-01-2018DOI 10.1590/0034-7167-2017-0749
Visualizações0Ver maisABSTRACT
Objective:
To understand the experience of adults living with cystic fibrosis.
Method:
A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories.
Results:
The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”.
Final considerations:
The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.
Visualizações0Resumo
RESEARCHExperience of adults with cystic fibrosis: a perspective based on social phenomenology
Revista Brasileira de Enfermagem. 2018;71(6):2891-2898
01-01-2018DOI 10.1590/0034-7167-2017-0749
Visualizações0Ver maisABSTRACT
Objective:
To understand the experience of adults living with cystic fibrosis.
Method:
A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories.
Results:
The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”.
Final considerations:
The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.
Cystic Fibrosis Archives - Revista Brasileira de Enfermagem
