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ORIGINAL ARTICLE05-03-2024
Preditores de volume excessivo de líquidos em pacientes em hemodiálise: estudo observacional
- Maria Isabel da Conceição Dias Fernandes
, - Jéssica Dantas de Sá Tinôco ,
- Renata Marinho Fernandes ,
- Juliana Barbosa da Silva ,
- Anna Thays Dias Almeida , [ … ],
- Ana Luisa Brandão de Carvalho Lira
Abstract
ORIGINAL ARTICLEPreditores de volume excessivo de líquidos em pacientes em hemodiálise: estudo observacional
Revista Brasileira de Enfermagem. 2024;77(1):e20220816
DOI 10.1590/0034-7167-2022-0816
- Maria Isabel da Conceição Dias Fernandes ,
- Jéssica Dantas de Sá Tinôco ,
- Renata Marinho Fernandes ,
- Juliana Barbosa da Silva ,
- Anna Thays Dias Almeida ,
- Cecília Maria Farias de Queiroz Frazão ,
- Marcos Venícius de Oliveira Lopes ,
- Ana Luisa Brandão de Carvalho Lira
Views0See moreRESUMEN
Objetivos:
evaluar los factores de riesgo del exceso de volumen de líquido en pacientes en hemodiálisis.
Métodos:
estudio retrospectivo de casos y controles. Se incluyeron 392 pacientes (196 casos y 196 controles) de dos centros de hemodiálisis. Se evaluaron datos sociodemográficos y 23 factores de riesgo de exceso de volumen de líquido mediante un formulario de recolección de datos. Los datos se analizaron mediante un modelo de regresión logística multivariado.
Resultados:
factores de riesgo conocimiento insuficiente (OR=2,06), ingesta excesiva de líquidos (OR=2,33), retirada inadecuada de líquidos durante la hemodiálisis (OR=2,62) e ingesta excesiva de sodio (OR=1,91) pueden aumentar aproximadamente dos veces la posibilidad de que se produzca un exceso de volumen de líquido en pacientes en hemodiálisis. La educación (OR=0,95) y la edad (OR=0,97) son factores protectores del volumen excesivo de líquido.
Conclusiones:
conocer estos factores de riesgo puede ayudar a las enfermeras a realizar una inferencia diagnóstica precisa y rápida del riesgo de volumen excesivo de líquidos.
- Maria Isabel da Conceição Dias Fernandes
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REVIEW05-03-2024
Nursing interventions to empower the family caregiver of person with lower limb amputation: scoping review
- Diana Fonseca Rodrigues ,
- Fabiana Sofia Ferreira Machado Castanheira ,
- António Luís Rodrigues Faria de Carvalho ,
- Cristina Maria Correia Barroso Pinto
Abstract
REVIEWNursing interventions to empower the family caregiver of person with lower limb amputation: scoping review
Revista Brasileira de Enfermagem. 2024;77(1):e20230264
DOI 10.1590/0034-7167-2023-0264
- Diana Fonseca Rodrigues ,
- Fabiana Sofia Ferreira Machado Castanheira ,
- António Luís Rodrigues Faria de Carvalho ,
- Cristina Maria Correia Barroso Pinto
Views0See moreABSTRACT
Objectives:
to map nursing interventions that empower the Family caregiver of the person with lower limb amputation for is role.
Methods:
scoping review guided by Joanna Briggs Institute methodology conducted in different databases (including gray literature).
Results:
six studies published between 2009 and 2021 were included. Interventions of counselling and support for patients and family; peer support interventions performed by a certified pair; involvement of caregivers or family members in support groups; and key interventions for patient and family caregiver psychological balance. Two studies discussed the importance of caregiver and amputee training and development of coping skills. Another study recommended Interventions of informative support for caregivers regarding care for the amputee and adaptation to home.
Conclusions:
results of this review allow the identification of recommendations (guidelines) for practice and recommendations/suggestions for interventions according with identified needs of family caregivers of patients with lower limb amputation.
- Diana Fonseca Rodrigues
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ORIGINAL ARTICLE05-03-2024
Cancer patient satisfaction regarding the quality of information received: psychometric validity of EORTC QLQ-INFO25
Revista Brasileira de Enfermagem. 2024;77(1):e20230358
Abstract
ORIGINAL ARTICLECancer patient satisfaction regarding the quality of information received: psychometric validity of EORTC QLQ-INFO25
Revista Brasileira de Enfermagem. 2024;77(1):e20230358
DOI 10.1590/0034-7167-2023-0358
Views0See moreABSTRACT
Objectives:
to psychometrically validate the European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire EORTC QLQ-INFO25 instrument and identify the domains that influence patients’ perception of the information received.
Methods:
a cross-sectional methodology with cancer patients in a Brazilian philanthropic hospital institution. Sociodemographic and clinical instruments, EORTC QLQ-C30, EORTC QLQ-INFO25 and Supportive Care Needs Survey – Short Form 34 were used. Analysis occurred using Cronbach’s alpha coefficients, intraclass correlation, test-retest and exploratory factor analysis.
Results:
128 respondents participated. Cronbach’s alpha coefficient was 0.85. The test-retest obtained p-value=0.21. In the factor analysis, one item was excluded. Satisfaction with the information received was 74%, with three areas with averages below 70%. In open-ended questions, there was a greater desire for information.
Conclusions:
validity evidence was obtained with instrument reliability, consistency and stability. Respondents expressed satisfaction with the information received.
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ORIGINAL ARTICLE05-03-2024
Predictors of excess fluid volume in hemodialysis patients: an observational study
- Maria Isabel da Conceição Dias Fernandes ,
- Jéssica Dantas de Sá Tinôco ,
- Renata Marinho Fernandes ,
- Juliana Barbosa da Silva ,
- Anna Thays Dias Almeida , [ … ],
- Ana Luisa Brandão de Carvalho Lira
Abstract
ORIGINAL ARTICLEPredictors of excess fluid volume in hemodialysis patients: an observational study
Revista Brasileira de Enfermagem. 2024;77(1):e20220816
DOI 10.1590/0034-7167-2022-0816
- Maria Isabel da Conceição Dias Fernandes ,
- Jéssica Dantas de Sá Tinôco ,
- Renata Marinho Fernandes ,
- Juliana Barbosa da Silva ,
- Anna Thays Dias Almeida ,
- Cecília Maria Farias de Queiroz Frazão ,
- Marcos Venícius de Oliveira Lopes ,
- Ana Luisa Brandão de Carvalho Lira
Views0See moreABSTRACT
Objectives:
to assess risk factors for excess fluid volume in hemodialysis patients.
Methods:
a retrospective case-control study was conducted. A total of 392 patients (196 cases and 196 controls) from two hemodialysis centers were included. Sociodemographic data and 23 risk factors for excess fluid volume were assessed using a data collection form. Data were analyzed using a multivariate logistic regression model.
Results:
the insufficient knowledge (OR=2.06), excessive fluid intake (OR=2.33), inadequate fluid removal during hemodialysis (OR=2.62) and excessive sodium intake (OR=1.91) risk factors may increase the chance of occurrence of excess fluid volume in hemodialysis patients by approximately two times. Education level (OR=0.95) and age (OR=0.97) are protective factors for excessive fluid volume.
Conclusions:
knowing these risk factors may help nurses with accurate and rapid diagnostic inference of the risk of excessive fluid volume.
- Maria Isabel da Conceição Dias Fernandes
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REVIEW05-03-2024
Elements of fatherhood involved in the gestational period: a scoping review
- Willyane de Andrade Alvarenga ,
- Maria da Conceição Silva Castro Sousa ,
- Joice Kelly Lima de Sales ,
- Rhyquelle Rhibna Neris ,
- Francine DeMontigny , [ … ],
- Lucila Castanheira Nascimento
Abstract
REVIEWElements of fatherhood involved in the gestational period: a scoping review
Revista Brasileira de Enfermagem. 2024;77(1):e20230029
DOI 10.1590/0034-7167-2023-0029
- Willyane de Andrade Alvarenga ,
- Maria da Conceição Silva Castro Sousa ,
- Joice Kelly Lima de Sales ,
- Rhyquelle Rhibna Neris ,
- Francine DeMontigny ,
- Lucila Castanheira Nascimento
Views0See moreABSTRACT
Objective:
To identify in the literature and summarize the elements and characteristics of fatherhood involved during pregnancy.
Method:
Scoping review that used PRISMA-ScR guide to report this review. Searches were carried out in PubMed, CINAHL, PsycInfo, LILACS and Scopus. Google search engines and public health agency websites assisted in searches of gray literature and Rayyan in screening studies.
Results:
A total of 406 articles were identified, of which 16 made up the final sample. Five elements make up an involved fatherhood: feeling like a father, being a provider and protector, being a partner and participant in pregnancy, participating in prenatal appointments and feeling prepared to take care of a baby.
Conclusion:
Fathers want to be involved in prenatal care, but feel excluded from this process. Public policies that encourage paternal involvement and healthcare professional training to better welcome and promote paternal involvement are of paramount importance.
- Willyane de Andrade Alvarenga
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ORIGINAL ARTICLE05-03-2024
Josicélia Dumêt Fernandes’ professional trajectory: contributions to psychiatric and mental health nursing
- Ingredy Nayara Chiacchio Silva ,
- Gilberto Tadeu Reis da Silva ,
- Itanna Vytoria Sousa Serra ,
- Deybson Borba de Almeida ,
- Giselle Alves da Silva Teixeira , [ … ],
- Ana Lúcia Arcanjo Oliveira Cordeiro
Abstract
ORIGINAL ARTICLEJosicélia Dumêt Fernandes’ professional trajectory: contributions to psychiatric and mental health nursing
Revista Brasileira de Enfermagem. 2024;77(1):e20230174
DOI 10.1590/0034-7167-2023-0174
- Ingredy Nayara Chiacchio Silva ,
- Gilberto Tadeu Reis da Silva ,
- Itanna Vytoria Sousa Serra ,
- Deybson Borba de Almeida ,
- Giselle Alves da Silva Teixeira ,
- Rosana Maria de Oliveira Silva ,
- Ana Lúcia Arcanjo Oliveira Cordeiro
Views0See moreABSTRACT
Objectives:
to analyze nurse Josicélia Dumêt Fernandes’ life story, with emphasis on her work in the psychiatry and mental health fields.
Methods:
historical, qualitative research. Semi-structured interviews and documentary research were used as data collection techniques, collected from September to October 2021. For data analysis, we opted for the content analysis method and comparison with the Foucauldian philosophical framework.
Results:
four categories emerged: Transforming herself and mental health practices; (Re)framing professional practice; Nursing practice and power relations; and The paths and implications in the psychiatry and mental health fields.
Final Considerations:
the study of the biographer demonstrates a search for transformation of herself and mental health practices, with a rupture in paradigms and reframing of her practice in psychiatry and mental health.
- Ingredy Nayara Chiacchio Silva
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ORIGINAL ARTICLE05-03-2024
What is the burden of multimorbidity and the factors associated with its occurrence in elderly Brazilians?
- Danielle Samara Tavares de Oliveira-Figueiredo ,
- Matteus Pio Gianotti Pereira Cruz Silva ,
- Paula Yhasmym de Oliveira Feitosa ,
- Bruna Cardoso Leite ,
- Fabiana Lucena Rocha , [ … ],
- Luciana Dantas Farias de Andrade
Abstract
ORIGINAL ARTICLEWhat is the burden of multimorbidity and the factors associated with its occurrence in elderly Brazilians?
Revista Brasileira de Enfermagem. 2024;77(1):e20220809
DOI 10.1590/0034-7167-2022-0809
- Danielle Samara Tavares de Oliveira-Figueiredo ,
- Matteus Pio Gianotti Pereira Cruz Silva ,
- Paula Yhasmym de Oliveira Feitosa ,
- Bruna Cardoso Leite ,
- Fabiana Lucena Rocha ,
- Luciana Dantas Farias de Andrade
Views0See moreABSTRACT
Objective:
To estimate the prevalence of multimorbidity in elderly people and its association with sociodemographic characteristics, lifestyle, and anthropometry.
Methods:
This was a cross-sectional study using data from the National Health Survey, 2019. A total of 22,728 elderly individuals from all 27 Brazilian states were randomly selected. Poisson regression models with robust variance were employed, and a significance level of 5% was adopted.
Results:
The prevalence of multimorbidity was 51.6% (95% CI: 50.4-52.7), with the highest estimates observed in the South and Southeast. Multimorbidity was associated with being female (aPR = 1.33; 95% CI: 1.27-1.39), being 80 years old or older (aPR = 1.12; 95% CI: 1.05-1.19), having low education (aPR = 1.16; 95% CI: 1.07-1.25), past cigarette use (aPR = 1.16; 95% CI: 1.11-1.21), insufficient physical activity (aPR = 1.13; 95% CI: 1.06-1.21), and screen use for 3 hours or more per day (aPR = 1.13; 95% CI: 1.08-1.18).
Conclusion:
Multimorbidity affects more than half of the elderly population in Brazil and is associated with social, demographic, and behavioral factors.
- Danielle Samara Tavares de Oliveira-Figueiredo
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ORIGINAL ARTICLE05-03-2024
Pregnancy loss in women with systemic lupus erythematosus: Grounded Theory
- Rebeca Rosa de Souza ,
- Mayckel da Silva Barreto ,
- Elen Ferraz Teston ,
- Maria Aparecida Salci ,
- Viviane Cazetta de Lima Vieira , [ … ],
- Sonia Silva Marcon
Abstract
ORIGINAL ARTICLEPregnancy loss in women with systemic lupus erythematosus: Grounded Theory
Revista Brasileira de Enfermagem. 2024;77(1):e20230225
DOI 10.1590/0034-7167-2023-0225
- Rebeca Rosa de Souza ,
- Mayckel da Silva Barreto ,
- Elen Ferraz Teston ,
- Maria Aparecida Salci ,
- Viviane Cazetta de Lima Vieira ,
- Sonia Silva Marcon
Views0ABSTRACT
Objective:
to learn the meanings attributed to pregnancy loss by women with Lupus.
Method:
qualitative research, based on Symbolic Interactionism and Grounded Theory. Data collection took place between January and August 2022 through in-depth interviews. Data analysis went through the stages of initial and focused coding.
Results:
seventeen women participated. The central phenomenon “The climb to motherhood: falls and overcoming” was constructed, consisting of three categories: “Falling to the ground during the climb: the experience of pregnancy loss”; “Getting up and following the path: new attempts to conceive”; and “Remembering the journey: meanings attributed to pregnancy losses”.
Final considerations:
experiencing pregnancy is, analogously, like climbing a mountain, where obstacles need to be overcome to reach the summit. The experience of pregnancy loss is seen as complex, especially when there is fragility in healthcare and a lack of awareness regarding feelings of loss and grief.
Keywords:AbortionGrounded TheoryHigh-RiskPregnancySpontaneousSymbolic InteractionismSystemic Lupus ErythematosusSee more
- Rebeca Rosa de Souza
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ORIGINAL ARTICLE06-29-2020
Hand hygiene in high-complexity sectors as an integrating element in the combat of Sars-CoV-2
- Danielle Galdino de Paula ,
- Marianna Ramos Francisco ,
- Juliana Dias Freitas ,
- Renata Christine Quintella Levachof ,
- Bianca de Oliveira Fonseca , [ … ],
- Rafael de Lima Bilio
Abstract
ORIGINAL ARTICLEHand hygiene in high-complexity sectors as an integrating element in the combat of Sars-CoV-2
Revista Brasileira de Enfermagem. 2020;73:e20200316
DOI 10.1590/0034-7167-2020-0316
- Danielle Galdino de Paula ,
- Marianna Ramos Francisco ,
- Juliana Dias Freitas ,
- Renata Christine Quintella Levachof ,
- Bianca de Oliveira Fonseca ,
- Bruno Francisco Teixeira Simões ,
- Rafael de Lima Bilio
Views0See moreABSTRACT
Objective:
to perform a situational diagnosis of the behavior of health professionals concerning hand hygiene practices in highly-complex sectors.
Methods:
this quantitative and retrospective study was based on reports (2016 and 2017) of Adult and Pediatric ICUs of a Federal hospital in Rio de Janeiro.
Results:
one thousand two hundred fifty-eight opportunities for hand hygiene were analysed. The chance of professionals sanitizing hands in Pediatric ICUs is 41.61% higher than in Adult ICUs. Concerning proper hand hygiene, the medical team had a 39.44% lower chance than the nursing team. Others had a 30.62% lower chance when compared to the nursing team. The moment “after contact with the patient” presented 4.5275 times the chance in relation “before contact with the patient”.
Conclusion:
in front of hand hygiene recommendations to control COVID-19, diagnostic assessment and previous analysis of the behavior of professionals proved to be positive.
- Danielle Galdino de Paula
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ORIGINAL ARTICLE08-19-2019
Functional capacity and social support to people affected by cerebrovascular accident
- Raquel Janyne de Lima ,
- Cláudia Jeane Lopes Pimenta ,
- Maria Cristina Lins de Oliveira Frazão ,
- Gerlania Rodrigues Salviano Ferreira ,
- Tatiana Ferreira da Costa , [ … ],
- Kátia Neyla de Freitas Macedo Costa
Abstract
ORIGINAL ARTICLEFunctional capacity and social support to people affected by cerebrovascular accident
Revista Brasileira de Enfermagem. 2019;72(4):868-873
DOI 10.1590/0034-7167-2017-0854
- Raquel Janyne de Lima ,
- Cláudia Jeane Lopes Pimenta ,
- Maria Cristina Lins de Oliveira Frazão ,
- Gerlania Rodrigues Salviano Ferreira ,
- Tatiana Ferreira da Costa ,
- Lia Raquel de Carvalho Viana ,
- Kaisy Pereira Martins ,
- Kátia Neyla de Freitas Macedo Costa
Views0See moreABSTRACT
Objective:
To investigate the functional capacity and its relationship with the level of social support to people affected by cerebrovascular accident.
Methods:
Cross-sectional and quantitative research, conducted with 108 individuals with sequelae of cerebrovascular accident in João Pessoa/PB. Data were collected through interviews, using a sociodemographic instrument – the Barthel Index and the Social Support Scale.
Results:
We observed the prevalence of functional dependency in 93.5%, and the mild dependency stood out in 40.7%. Medium social support was the most found, with 48.2%. The predominant dimensions of social support were the material dimension, followed by the emotional. There was a significant association (p ≤ 0.05) between very serious dependency and high social support.
Conclusion:
The results found allow us to reflect on the need for involvement of health professionals in strengthening the social support of patients with disabling diseases, such as the cerebrovascular accident.
- Raquel Janyne de Lima
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ORIGINAL ARTICLE08-19-2019
Nursing practice in home care: the mediation of care by reflexivity
- Angélica Mônica Andrade ,
- Edna Aparecida Barbosa de Castro ,
- Maria José Menezes Brito ,
- Patrícia Pinto Braga ,
- Kênia Lara Silva
Abstract
ORIGINAL ARTICLENursing practice in home care: the mediation of care by reflexivity
Revista Brasileira de Enfermagem. 2019;72(4):956-963
DOI 10.1590/0034-7167-2018-0431
- Angélica Mônica Andrade ,
- Edna Aparecida Barbosa de Castro ,
- Maria José Menezes Brito ,
- Patrícia Pinto Braga ,
- Kênia Lara Silva
Views0See moreABSTRACT
Objective:
To analyze the practice of nurses in home care, considering the mediation of care by reflexivity.
Method:
Unique, qualitative case study, anchored in the dialectical framework. The participants were 13 nurses who work in home care in Minas Gerais. Data were obtained by participant observation and interview, and submitted to critical discourse analysis.
Results:
Nursing care at home involves the repetitions of everyday actions and a degree of unpredictability. Reflexivity, according to Schön’s theoretical framework, emerges as a component of professional practice that leads to the practice of care as a continuous assessment of work, and also to reflection on the challenges imposed by conflicting situations. Reflexivity also stems from professionals’ search for improvements in their practices.
Final considerations:
We identified the presence of actions and knowledge mobilized by the reflexivity of the nurse in the home care setting. The following were the elements of this reflexive practice: knowing-in-action, reflection-in-action and reflection reflection-in-action.
- Angélica Mônica Andrade
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ORIGINAL ARTICLE10-18-2022
Adherence to antiretroviral therapy by adults living with HIV/aids: a cross-sectional study
- Mariana de Morais Fortunato Miranda ,
- Dayanne Rakelly de Oliveira ,
- Glauberto da Silva Quirino ,
- Célida Juliana de Oliveira ,
- Maria Lúcia Duarte Pereira , [ … ],
- Edilma Gomes Rocha Cavalcante
Abstract
ORIGINAL ARTICLEAdherence to antiretroviral therapy by adults living with HIV/aids: a cross-sectional study
Revista Brasileira de Enfermagem. 2022;75(2):e20210019
DOI 10.1590/0034-7167-2021-0019
- Mariana de Morais Fortunato Miranda ,
- Dayanne Rakelly de Oliveira ,
- Glauberto da Silva Quirino ,
- Célida Juliana de Oliveira ,
- Maria Lúcia Duarte Pereira ,
- Edilma Gomes Rocha Cavalcante
Views0ABSTRACT
Objective:
To verify the association between adherence to antiretroviral treatment by adults with HIV/AIDS and sociodemographic factors, social and clinical support.
Methods:
Cross-sectional study, with a quantitative approach. Participation of 230 patients. Questionnaires of sociodemographic characterization, social and clinical support, and assessment of adherence to antiretroviral treatment were used. Descriptive and inferential statistics were performed.
Results:
Adherence was classified as good/adequate. An association with sex, income, employment, and level of education was noted. In social support: having access to health services; communication with health professionals; health education; having support to allow venting/talking about issues; information on HIV/AIDS; and company for leisure. In the clinical profile: non-interruption of the drug treatment due to absence from the service or due to changes in the medical prescription.
Conclusion:
Adherence was classified as good/adequate and especially associated with social support factors, which should be enhanced in clinical practice.
Keywords:Acquired Immunodeficiency SyndromeAdherence to MedicationHighly Active Antiretroviral TherapyHIVSocial SupportSee more - Mariana de Morais Fortunato Miranda
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ORIGINAL ARTICLE03-30-2020
Professional skills for health promotion in caring for tuberculosis patients
- Amanda de Fátima Alves Costa ,
- Altamira Mendonça Félix Gomes ,
- Ana Fátima Carvalho Fernandes ,
- Lucilane Maria Sales da Silva ,
- Lorena Pinheiro Barbosa , [ … ],
- Priscila de Souza Aquino
Abstract
ORIGINAL ARTICLEProfessional skills for health promotion in caring for tuberculosis patients
Revista Brasileira de Enfermagem. 2020;73(2):e20180943
DOI 10.1590/0034-7167-2018-0943
- Amanda de Fátima Alves Costa ,
- Altamira Mendonça Félix Gomes ,
- Ana Fátima Carvalho Fernandes ,
- Lucilane Maria Sales da Silva ,
- Lorena Pinheiro Barbosa ,
- Priscila de Souza Aquino
Views0See moreABSTRACT
Objectives:
to understand the health promotion skills found in the speeches of health practitioners in care for TB patients.
Methods:
qualitative study, developed with seven practitioners involved in care for TB patients, identified from a sociocentric approach, whose speeches were submitted to analysis based on the health promotion skills model in the Galway Consensus.
Results:
there were four domains: Catalyzing change; Leadership; Planning; and Partnerships. These domains resulted from health education actions, contribution of management nursing practitioners, seeking to meet patients’ needs and articulation of professional sectors.
Final considerations:
there were some skill domains in the speeches of health practitioners, with the nurse being quoted in the development of essential skills for health promotion activities, such as catalyzing change and leading care for TB patients.
- Amanda de Fátima Alves Costa
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EDITORIAL01-27-2020
Comparison of Interpretive Description and Qualitative Description in the Nursing Scope
Revista Brasileira de Enfermagem. 2020;73(1):e20190339
Abstract
EDITORIALComparison of Interpretive Description and Qualitative Description in the Nursing Scope
Revista Brasileira de Enfermagem. 2020;73(1):e20190339
DOI 10.1590/0034-7167-2019-0339
Views0Interpretive Description BasisID is a small scale qualitative research about a phenomenon regarded in the field that aims to extract themes and patterns. This approach begins with the critical analysis of clinical and theoretical knowledge in the field. It develops the initial conceptual framework, however it does not enter procedures details. Instead, this approach explains […]See more -
ORIGINAL ARTICLE06-04-2021
Information demands from families of children with Autism Spectrum Disorder
- Gisele Weissheimer ,
- Verônica de Azevedo Mazza ,
- Julia Mazul Santana ,
- Victoria Beatriz Trevisan Nobrega Martins Ruthes ,
- Cibelly Aliny Siqueira Lima Freitas
Abstract
ORIGINAL ARTICLEInformation demands from families of children with Autism Spectrum Disorder
Revista Brasileira de Enfermagem. 2021;74(5):e20200642
DOI 10.1590/0034-7167-2020-0642
- Gisele Weissheimer ,
- Verônica de Azevedo Mazza ,
- Julia Mazul Santana ,
- Victoria Beatriz Trevisan Nobrega Martins Ruthes ,
- Cibelly Aliny Siqueira Lima Freitas
Views0See moreABSTRACT
Objective:
to identify the information demands of families of children with Autism Spectrum Disorder.
Method:
this is a qualitative study conducted through semi-structured and audio-recorded interviews with 55 family members, in the states of Paraná, Ceará, and Macapá, between September 2018 and September 2019. Thematic category analysis and Qualitative Data Analysis Software resources were used for data organization.
Results:
it was identified that families need information regarding the characteristics of Autism Spectrum Disorder (definition, cause, possibility of cure, prognosis and the probability of having another child with Autism Spectrum Disorder); child’s routine and behavior; future rights and expectations.
Final considerations:
information demands are relevant to support professionals, health managers and other services in health care organization to support families of children with autism.
- Gisele Weissheimer
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ORIGINAL ARTICLE07-31-2020
Educational demands of family members of children with special health care needs in the transition from hospital to home
- Meirilane Lima Precce ,
- Juliana Rezende Montenegro Medeiros de Moraes ,
- Sandra Teixeira de Araújo Pacheco ,
- Liliane Faria da Silva ,
- Daniele Santos da Conceição , [ … ],
- Elisa da Conceição Rodrigues
Abstract
ORIGINAL ARTICLEEducational demands of family members of children with special health care needs in the transition from hospital to home
Revista Brasileira de Enfermagem. 2020;73:e20190156
DOI 10.1590/0034-7167-2019-0156
- Meirilane Lima Precce ,
- Juliana Rezende Montenegro Medeiros de Moraes ,
- Sandra Teixeira de Araújo Pacheco ,
- Liliane Faria da Silva ,
- Daniele Santos da Conceição ,
- Elisa da Conceição Rodrigues
Views0See moreABSTRACT
Objectives:
to analyze the educational demands of family members of children with special health care needs in the transition from hospital to home
Methods:
qualitative research conducted between February and June 2018, using the handbook on creativity and sensitivity dynamics, from the sensitive creative method; the participants were nine family caregivers of children admitted to a public hospital in Rio de Janeiro; the data were subjected to French discourse analysis
Results:
the educational demands were clinical, centered on the categories complex and continuous care, technological care, modified habits, medication, development and mixed care, and social, related to the supplies and rights of children
Final Considerations:
the social educational demand has emerged as a new demand to be incorporated in the care of these children. The transition from hospital to home should be progressive and have the nurse as its coordinator, with the objective of providing participatory, safe, quality care, articulated within a social network
- Meirilane Lima Precce
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