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ORIGINAL ARTICLE07-29-2024
Contribution of informal caregivers to self-care in individuals with heart failure
- Mailson Marques de Sousa
, - Adriana Meira Tiburtino Nepomuceno ,
- Rayana Pereira Feitosa ,
- Lara de Sá Neves Loureiro ,
- Renan Alves Silva , [ … ],
- Simone Helena dos Santos Oliveira
Abstract
ORIGINAL ARTICLEContribution of informal caregivers to self-care in individuals with heart failure
Revista Brasileira de Enfermagem. 2024;77(3):e20230492
DOI 10.1590/0034-7167-2023-0492
- Mailson Marques de Sousa ,
- Adriana Meira Tiburtino Nepomuceno ,
- Rayana Pereira Feitosa ,
- Lara de Sá Neves Loureiro ,
- Renan Alves Silva ,
- Maria das Graças Melo Fernandes ,
- Simone Helena dos Santos Oliveira
Views0See moreABSTRACT
Objectives:
to evaluate the contribution of informal caregivers to the self-care of individuals with heart failure.
Methods:
a cross-sectional study was conducted with 87 caregivers from March to October 2022 in the city of João Pessoa/PB. The caregivers’ contribution was assessed using the Caregiver Contribution to Self-Care of Heart Failure Index instrument. Scores ≥ 70 points indicate adequate contribution. Data were analyzed using descriptive statistics and Spearman’s correlation.
Results:
the sample consisted of 81.6% female caregivers. Median scores obtained for the self-care contribution scales were: 63.3 for maintenance; 55.5 for management; and 66.6 for confidence. Caregivers never or rarely recommended monitoring body weight, regular physical exercise, extra use of diuretics, and fluid restriction.
Conclusions:
informal caregivers showed inadequate contribution in the areas of maintenance, management, and confidence in self-care of individuals with heart failure.
- Mailson Marques de Sousa
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ORIGINAL ARTICLE07-29-2024
Mental health of parents of children and adolescents who require special health care
- Eliana Roldão dos Santos Nonose ,
- Rosane Meire Munhak da Silva ,
- Eliane Tatsch Neves ,
- Débora Falleiros de Mello ,
- Adriana Zilly , [ … ],
- Regina Aparecida Garcia de Lima
Abstract
ORIGINAL ARTICLEMental health of parents of children and adolescents who require special health care
Revista Brasileira de Enfermagem. 2024;77(3):e20230457
DOI 10.1590/0034-7167-2023-0457
- Eliana Roldão dos Santos Nonose ,
- Rosane Meire Munhak da Silva ,
- Eliane Tatsch Neves ,
- Débora Falleiros de Mello ,
- Adriana Zilly ,
- Aline Cristiane Cavicchioli Okido ,
- Regina Aparecida Garcia de Lima
Views0See moreABSTRACT
Objective:
To identify the manifestations presented by parents of children and adolescents who require special health attention that can impact their mental health.
Methods:
exploratory, qualitative research, based on the concept of vulnerability, with data collection carried out through interviews with 18 parents of children and adolescents with special health care needs, hospitalized in the pediatric ward of a hospital in Paraná, between May/2017 and May/ 2018. Data analyzed by inductive thematic analysis.
Results:
parents experienced situations of vulnerability when providing care at home, with repercussions on their mental health, expressed by manifestations of lack of protection, anxiety and depression.
Final considerations:
It is important that health professionals seek to expand actions to promote care and reduce situations that generate threats, insecurities, concerns and damage to the health of parents, which can impact and further weaken care for children and adolescents who need attention especially health.
- Eliana Roldão dos Santos Nonose
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07-29-2024
Reflections on theoretical framework use in nursing research
- Maria Ribeiro Lacerda ,
- Rudval Souza da Silva ,
- Nadirlene Pereira Gomes ,
- Silvana Regina Rossi Kissula Souza
Abstract
Reflections on theoretical framework use in nursing research
Revista Brasileira de Enfermagem. 2024;77(3):e20230486
DOI 10.1590/0034-7167-2024-0486
- Maria Ribeiro Lacerda ,
- Rudval Souza da Silva ,
- Nadirlene Pereira Gomes ,
- Silvana Regina Rossi Kissula Souza
Views0See moreABSTRACT
Objectives:
to reflect on theoretical framework use in nursing research.
Methods:
a theoretical-reflexive study, based on concepts and constructs pertinent to using nursing theories and other sciences, considering issues of epistemology or philosophy of science.
Results:
we presented what it is and why to do nursing research and what a theoretical framework is and why to use it, in addition to some considerations regarding theoretical framework use in nursing research, essential for constructing disciplinary knowledge, which enables the materialization of researchers’ work and the presentation of propositions resulting from investigations in and for nursing as a discipline and science.
Final Considerations:
based on a reflection based on epistemological conceptions, it is possible to affirm that a theoretical framework is the core of researchers’ thinking, delimiting a problem to be investigated and, based on it, outlining methodological strategies to be followed, supporting nursing action and thinking as discipline and science.
- Maria Ribeiro Lacerda
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REVIEW07-29-2024
Nursing diagnoses for people hospitalized with heart failure: an integrative review
- Ana Paula Dias de Oliveira ,
- Lucas Garcia Lima ,
- Vinicius Batista Santos ,
- Larissa Maiara da Silva Alves Souza ,
- Juliana de Lima Lopes , [ … ],
- Alba Lucia Bottura Leite de Barros
Abstract
REVIEWNursing diagnoses for people hospitalized with heart failure: an integrative review
Revista Brasileira de Enfermagem. 2024;77(3):e20230471
DOI 10.1590/0034-7167-2023-0471
- Ana Paula Dias de Oliveira ,
- Lucas Garcia Lima ,
- Vinicius Batista Santos ,
- Larissa Maiara da Silva Alves Souza ,
- Juliana de Lima Lopes ,
- Alba Lucia Bottura Leite de Barros
Views0See moreABSTRACT
Objectives:
to identify in the literature the main nursing diagnoses according to the NANDA-I diagnostic classification for people hospitalized with heart failure.
Methods:
an integrative literature review, carried out in February 2019 and updated in July 2023, in the MEDLINE via PubMed, LILACS, SciELO and CINAHL databases. Given the use of acronym PEO, studies without a time cut in Portuguese, English and Spanish were included. Descriptive analysis was carried out to present the identified information.
Results:
analysis of 27 articles identified 24 nursing diagnoses, with emphasis on Decreased Cardiac Output, Excessive Fluid Volume, Decreased Activity Tolerance and Fatigue.
Final Considerations:
evidence can contribute to better diagnostic decisions centered on people with heart failure in search of more assertive health results and have the potential to support future studies on a possible syndromic pattern in this population.
- Ana Paula Dias de Oliveira
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ORIGINAL ARTICLE07-29-2024
Disrupted mother-fetus dyad risk in high-risk pregnancies: a Middle-Range Theory
- Ryanne Carolynne Marques Gomes Mendes ,
- Gabrielle Pessôa da Silva ,
- Jaqueline Galdino Albuquerque Perrelli ,
- Cleide Maria Pontes ,
- Lívia Maia Pascoal , [ … ],
- Francisca Márcia Pereira Linhares
Abstract
ORIGINAL ARTICLEDisrupted mother-fetus dyad risk in high-risk pregnancies: a Middle-Range Theory
Revista Brasileira de Enfermagem. 2024;77(3):e20230464
DOI 10.1590/0034-7167-2023-0464
- Ryanne Carolynne Marques Gomes Mendes ,
- Gabrielle Pessôa da Silva ,
- Jaqueline Galdino Albuquerque Perrelli ,
- Cleide Maria Pontes ,
- Lívia Maia Pascoal ,
- Ana Luisa Brandão de Carvalho Lira ,
- Marcos Venícios de Oliveira Lopes ,
- Suzana de Oliveira Mangueira ,
- Francisca Márcia Pereira Linhares
Views0See moreABSTRACT
Objectives:
to develop and evaluate a Middle-Range Theory for the nursing diagnosis “Disrupted Mother-Fetus Dyad Risk” in high-risk pregnancies.
Methods:
this methodological study was conducted in two stages: theory development and evaluation. Dorothea Orem’s General Nursing Model was used as the theoretical-conceptual foundation. Evaluation was conducted using the Delphi method with seven judges, and consensus was achieved when the Content Validity Index of the evaluated items was ≥ 0.80.
Results:
the theory identified 20 elements of the nursing diagnosis “Disrupted Mother-Fetus Dyad Risk” (10 risk factors, 4 at-risk populations, and 6 associated conditions), 14 propositions, and 1 pictogram. After two rounds of evaluation, the theory was considered consistent, with consensus reached for all items, each achieving a Content Validity Index ≥ 0.80.
Conclusions:
the Middle-Range Theory included biopsychosocial factors explaining the nursing phenomenon “Disrupted Mother-Fetus Dyad Risk,” which aids in nurses’ diagnostic reasoning.
- Ryanne Carolynne Marques Gomes Mendes
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ORIGINAL ARTICLE07-29-2024
Family refusal of skin donation for transplantation: trends and associated factors
- Karoline de Oliveira Lins Souto ,
- Rafael Rodrigo da Silva Pimentel ,
- Ágata Nunes Brito ,
- Edvaldo Leal de Moraes ,
- Marcelo José dos Santos
Abstract
ORIGINAL ARTICLEFamily refusal of skin donation for transplantation: trends and associated factors
Revista Brasileira de Enfermagem. 2024;77(3):e20230209
DOI 10.1590/0034-7167-2023-0209
- Karoline de Oliveira Lins Souto ,
- Rafael Rodrigo da Silva Pimentel ,
- Ágata Nunes Brito ,
- Edvaldo Leal de Moraes ,
- Marcelo José dos Santos
Views0See moreABSTRACT
Objectives:
to analyze the trends and factors associated with family refusal of skin donation for transplantation.
Methods:
this cross-sectional study was conducted in the State of São Paulo, with family authorization terms collected from 2001 to 2020. The variables analyzed included year, age, gender, cause of death, and type of institution. Data were analyzed using linear and multiple logistic regression, with the Odds Ratio estimated at p<0.05 for statistical significance.
Results:
1,355 individuals refused skin donation. The trend of refusals decreased between 2001 and 2009 in the age groups of 0-11 years and 12-19 years, but increased in the group aged ≥60 years. This trend continued to decrease in the 0-11 years group from 2010 to 2020, and increased in the 20-40 years group. Males and the age groups of 20-40 years, 41-59 years, and ≥60 years exhibited 27%, 34%, 47%, and 53% lower chances of refusal, respectively.
Conclusions:
there is an urgent need for measures to mitigate the high number of refusals associated with skin donation.
- Karoline de Oliveira Lins Souto
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ORIGINAL ARTICLE07-29-2024
Primary Health Care in transitional care of people with stroke
- Adriana Bitencourt Magagnin ,
- Kenia Lara da Silva ,
- Giane Zupellari dos Santos Melo ,
- Ivonete Teresinha Schulter Buss Heidemann
Abstract
ORIGINAL ARTICLEPrimary Health Care in transitional care of people with stroke
Revista Brasileira de Enfermagem. 2024;77(3):e20230468
DOI 10.1590/0034-7167-2024-0468
- Adriana Bitencourt Magagnin ,
- Kenia Lara da Silva ,
- Giane Zupellari dos Santos Melo ,
- Ivonete Teresinha Schulter Buss Heidemann
Views0See moreABSTRACT
Objectives:
to understand the role of Primary Health Care teams in caring for people with stroke after hospital discharge.
Methods:
single case study, with integrated units of analysis, with a qualitative approach. Data triangulation occurred through interviews with professionals and family caregivers involved in transition of care, in addition to direct observations in rounds and document analysis. For the analyses, the analytical strategies of theoretical propositions and construction of explanations were used, with the help of ATLAS.ti®.
Results:
the importance of counter-referral, the role of community health workers and the multidisciplinary team, health promotion, secondary prevention, home visits as a visceral attribute and nurses as care managers are evident.
Final Considerations:
the high demand on teams and the Social Determinants of Health interfere with adequate continuity of care. Transitional care programs that enable continuity of care are recommended.
- Adriana Bitencourt Magagnin
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ORIGINAL ARTICLE07-29-2024
Completeness of variables in Hospital-Based Cancer Registries for prostatic malignant neoplasm
- Wesley Rocha Grippa ,
- Raphael Manhães Pessanha ,
- Larissa Soares Dell’Antonio ,
- Cristiano Soares da Silva Dell’Antonio ,
- Luciane Bresciani Salaroli , [ … ],
- Luís Carlos Lopes-Júnior
Abstract
ORIGINAL ARTICLECompleteness of variables in Hospital-Based Cancer Registries for prostatic malignant neoplasm
Revista Brasileira de Enfermagem. 2024;77(3):e20230467
DOI 10.1590/0034-7167-2023-0467
- Wesley Rocha Grippa ,
- Raphael Manhães Pessanha ,
- Larissa Soares Dell’Antonio ,
- Cristiano Soares da Silva Dell’Antonio ,
- Luciane Bresciani Salaroli ,
- Luís Carlos Lopes-Júnior
Views0See moreABSTRACT
Objectives:
to analyze the completeness of variables from Hospital-Based Cancer Registries of cases of prostate neoplasm in the Oncology Care Network of a Brazilian state between 2000 and 2020.
Methods:
an ecological time series study, based on secondary data on prostate cancer Hospital-Based Cancer Registries prostate. Data incompleteness was classified as excellent (<5%), good (between 5%-10%), fair (10%-20%), poor (20%-50%) and very poor (>50%), according to the percentage of lack of information.
Results:
there were 13,519 cases of prostate cancer in the Hospital-Based Cancer Registries analyzed. The variables “family history of cancer” (p<0.001), “alcoholism” (p<0.001), “smoking” (p<0.001), “TNM staging” (p<0.001) had a decreasing trend, while “clinical start of treatment” (p<0.001), “origin” (p=0.008) and “occupation” (p<0.001) indicated an increasing trend.
Conclusions:
most Hospital-Based Cancer Registries variables showed excellent completeness, but important variables had high percentages of incompleteness, such as TNM and clinical staging, in addition to alcoholism and smoking.
- Wesley Rocha Grippa
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REVIEW12-05-2019
Financial-patrimonial elder abuse: an integrative review
- Ana Maria Ribeiro dos Santos ,
- Fernanda Lorrany Silva ,
- Rosalina Aparecida Partezani Rodrigues ,
- Guilherme Guarino de Moura Sá ,
- José Diego Marques Santos , [ … ],
- Maria Zélia Araújo Madeira
Abstract
REVIEWFinancial-patrimonial elder abuse: an integrative review
Revista Brasileira de Enfermagem. 2019;72:328-336
DOI 10.1590/0034-7167-2018-0703
- Ana Maria Ribeiro dos Santos ,
- Fernanda Lorrany Silva ,
- Rosalina Aparecida Partezani Rodrigues ,
- Guilherme Guarino de Moura Sá ,
- José Diego Marques Santos ,
- Elaine Maria Leite Rangel Andrade ,
- Maria Zélia Araújo Madeira
Views0See moreABSTRACT
Objective:
to analyze the available evidence in the nursing literature about financial-patrimonial elder abuse.
Method:
integrative review of articles indexed in the databases CINAHL, Scopus, Web of Science, LILACS and MEDLINE, from 2007 to 2017. The combination of controlled and uncontrolled descriptors was used in Portuguese, English and Spanish.
Results:
15 studies developed in seven countries were included. In the thematic analysis, three categories emerged: epidemiological data, risk factors and institutions providing services to the elderly. The occurrence of this type of violence concomitantly to the other subtypes was highlighted among the most frequent.
Final considerations:
the literature points to important epidemiological data, risk factors and characteristics of this type of violence, including within institutions providing services to the elderly, in different countries, essential aspects for structuring and rethinking public policies for protection and appreciation of the elderly.
- Ana Maria Ribeiro dos Santos
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ORIGINAL ARTICLE12-05-2019
Quality of life, burden, family emotional support: a model for older adults who are caregivers
Revista Brasileira de Enfermagem. 2019;72:169-176
Abstract
ORIGINAL ARTICLEQuality of life, burden, family emotional support: a model for older adults who are caregivers
Revista Brasileira de Enfermagem. 2019;72:169-176
DOI 10.1590/0034-7167-2018-0439
Views0See moreABSTRACT
Objective:
To investigate associations between quality of life, sex, age, burden, and nature of emotional support available in the family in older adults who are caregivers of older relatives.
Method:
Cross-sectional and correlational study on 148 caregivers gathered in public and private healthcare services, who were subjected to psychological measures of quality of life, burden, exchange of emotional support, sex, and age. Data were analyzed using Chi-square, Fisher’s exact test and path analyses (p < 0.05).
Results:
A total of 77% women, average age of 69.7 years. There were significant associations between exchange of support and burden due to the provided assistance, being a woman and satisfaction with the received support, satisfaction with the received support and burden, burden and quality of life, and satisfaction with the received support and feeling of burden due to the provided support.
Conclusion:
Satisfaction with the received emotional support moderate the association between sex and burden, and such moderate the association between satisfaction with emotional support and perceived quality of life.
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ORIGINAL ARTICLE11-26-2022
Vulnerability and quality of life of older persons in the community in different situations of family care
Revista Brasileira de Enfermagem. 2022;75:e20210034
Abstract
ORIGINAL ARTICLEVulnerability and quality of life of older persons in the community in different situations of family care
Revista Brasileira de Enfermagem. 2022;75:e20210034
DOI 10.1590/0034-7167-2021-0034
Views0See moreABSTRACT
Objective:
to correlate socio-contextual aspects, physical vulnerability and quality of life of older persons in the community in different situations of family care.
Methods:
epidemiological, a cross-sectional and analytical study, with elderly people in the community (n=769), with application of the instruments: Vulnerable Elders Survey-13 (VES-13), World Health Organization Quality of Life for Older Persons (WHOQOL-OLD) and the World Health Organization Quality of Life (WHOQOL-BREF); and socio-contextual data questionnaire.
Results:
the population assessed presented an average of regular quality of life in both the WHOQOL-BREF and the WHOQOL-OLD. Older non-vulnerable persons (62.2%) and those with close family contact (82.6%) have a better quality of life than the vulnerable (p<0.0001).
Conclusion:
lower quality of life scores and more distant families are related to vulnerable elderly people; thus, the assessment of family proximity and physical vulnerability of older persons is shown to be an important factor in improving quality of life.
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03-19-2021
Validity and reliability of Kessler Psychological Distress Scale for Brazilian elderly: a cross-sectional study
- Gabriella Oliveira de Albuquerque Lins ,
- Nathália Angel da Silva Lima ,
- Girliani Silva de Sousa ,
- Fernanda Jorge Guimarães ,
- Iracema da Silva Frazão , [ … ],
- Jaqueline Galdino Albuquerque Perrelli
Abstract
Validity and reliability of Kessler Psychological Distress Scale for Brazilian elderly: a cross-sectional study
Revista Brasileira de Enfermagem. 2021;74:e20200365
DOI 10.1590/0034-7167-2020-0365
- Gabriella Oliveira de Albuquerque Lins ,
- Nathália Angel da Silva Lima ,
- Girliani Silva de Sousa ,
- Fernanda Jorge Guimarães ,
- Iracema da Silva Frazão ,
- Jaqueline Galdino Albuquerque Perrelli
Views0See moreABSTRACT
Objective:
to verify the validity and reliability of the Psychological Distress Scale for screening mental distress.
Methods:
a cross-sectional study with 75 elderly people. Psychological Distress scale and Self Reporting Questionnaire were used. Criterion validity was verified using Spearman’s correlation and diagnostic accuracy measures. Cronbach’s alpha coefficient was used to investigate reliability.
Results:
the total internal consistency of the Psychological Distress Scale was α=0.844. Concurrent validity between this instrument and the Self Reporting Questionnaire was ρ=0.722 (p<0.001). The best cut-off point for screening mental distress among elderly people was a total score greater than 14, with sensitivity equal to 75.47% and specificity equal to 85.0%.
Conclusions:
the scale was robust for screening mental distress, given its high reliability, in terms of homogeneity, and adequate criterion validity, whose best cut-off point for screening was a score greater than 14.
- Gabriella Oliveira de Albuquerque Lins
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ORIGINAL ARTICLE12-05-2019
Functional capacity assessment of long-lived older adults from Amazonas
- Daiane de Souza Fernandes ,
- Lucia Hisako Takase Gonçalves ,
- Angela Maria Rodrigues Ferreira ,
- Maria Izabel Penha de Oliveira Santos
Abstract
ORIGINAL ARTICLEFunctional capacity assessment of long-lived older adults from Amazonas
Revista Brasileira de Enfermagem. 2019;72:49-55
DOI 10.1590/0034-7167-2017-0798
- Daiane de Souza Fernandes ,
- Lucia Hisako Takase Gonçalves ,
- Angela Maria Rodrigues Ferreira ,
- Maria Izabel Penha de Oliveira Santos
Views0See moreABSTRACT
Objective:
To evaluate the functional capacity of long-lived older adults from Amazonas.
Method:
A cross-sectional epidemiological study was carried out with 116 older adults aged 80 years or older, registered in a primary health care unit in Belém, in the state of Pará, Brazil. The Functional Independence Measure (FIM) was used for functional capacity assessment and the Mini-Mental State Examination (MMSE) for cognitive screening. Univariate and bivariate analyses were carried out, in addition to the Pearson’s chi-square test.
Results:
The older adults presented modified independence in the self-care, sphincter control and locomotion dimensions, and needed supervision for mobility/transfers. In mobility, men presented complete independence. Modified independence was found in the 80-89 age group. It was observed that, the lower the education level, the worse the cognitive performance.
Conclusion:
In spite of their advanced age, long-lived older adults still present functional capacity for activities of daily living, even though they required supervision for high energy expenditure tasks, such as mobility and transfers.
- Daiane de Souza Fernandes
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ORIGINAL ARTICLE12-05-2019
Self-care activities, sociodemographic variables, treatment and depressive symptoms among older adults with Diabetes Mellitus
Revista Brasileira de Enfermagem. 2019;72:22-29
Abstract
ORIGINAL ARTICLESelf-care activities, sociodemographic variables, treatment and depressive symptoms among older adults with Diabetes Mellitus
Revista Brasileira de Enfermagem. 2019;72:22-29
DOI 10.1590/0034-7167-2017-0579
Views0See moreABSTRACT
Objective:
to analyze the association between self-care activities of older adults with Type 2 Diabetes Mellitus (DM) and sociodemographic variables, type of treatment and depressive symptoms.
Method:
inferential and cross-sectional study, with 121 older adults with Type 2 DM in ambulatory care. We used a questionnaire for characterization of sociodemographic and health, questionnaire self-care activities with DM, Mini Mental State Examination and Geriatric Depression Scale. The association of variables was used (Fisher’s exact test) and for comparing the means (Student’s t-test and analysis of variance).
Results:
The mean age was 68.1 years, the majority were women (57.2%), retired (71.9%) and married (65.3%). The highest averages were for the activities: “to dry the spaces between the toes, after washing them” and smaller averages for “exercise”.
Conclusion:
In spite of high average for self-care activities, there is a need for enhanced performance and compliance to them.
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12-04-2023
Nursing and the Sustainable Development Goals (SDGs): An Essential Commitment
Revista Brasileira de Enfermagem. 2023;76(6):e760601
Abstract
Nursing and the Sustainable Development Goals (SDGs): An Essential Commitment
Revista Brasileira de Enfermagem. 2023;76(6):e760601
DOI 10.1590/0034-7167.2023760601
Views0The Sustainable Development Goals (SDGs) are a global initiative launched by the United Nations (UN) in September 2015 as part of the 2030 Agenda for Sustainable Development, whose objectives summarize a universal call to action to end poverty, protect the environment and ensure that all people have access to opportunities and well-being, all in an […]See more -
ORIGINAL ARTICLE06-04-2021
Information demands from families of children with Autism Spectrum Disorder
- Gisele Weissheimer ,
- Verônica de Azevedo Mazza ,
- Julia Mazul Santana ,
- Victoria Beatriz Trevisan Nobrega Martins Ruthes ,
- Cibelly Aliny Siqueira Lima Freitas
Abstract
ORIGINAL ARTICLEInformation demands from families of children with Autism Spectrum Disorder
Revista Brasileira de Enfermagem. 2021;74(5):e20200642
DOI 10.1590/0034-7167-2020-0642
- Gisele Weissheimer ,
- Verônica de Azevedo Mazza ,
- Julia Mazul Santana ,
- Victoria Beatriz Trevisan Nobrega Martins Ruthes ,
- Cibelly Aliny Siqueira Lima Freitas
Views0See moreABSTRACT
Objective:
to identify the information demands of families of children with Autism Spectrum Disorder.
Method:
this is a qualitative study conducted through semi-structured and audio-recorded interviews with 55 family members, in the states of Paraná, Ceará, and Macapá, between September 2018 and September 2019. Thematic category analysis and Qualitative Data Analysis Software resources were used for data organization.
Results:
it was identified that families need information regarding the characteristics of Autism Spectrum Disorder (definition, cause, possibility of cure, prognosis and the probability of having another child with Autism Spectrum Disorder); child’s routine and behavior; future rights and expectations.
Final considerations:
information demands are relevant to support professionals, health managers and other services in health care organization to support families of children with autism.
- Gisele Weissheimer
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