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01-01-2016
The experience of grandmothers of children with cancer
Revista Brasileira de Enfermagem. 2016;69(3):559-565
Abstract
The experience of grandmothers of children with cancer
Revista Brasileira de Enfermagem. 2016;69(3):559-565
DOI 10.1590/0034-7167.2016690320i
Views0See moreABSTRACT
Objective:
to understand, from grandmothers’ perspectives, the experience of having a grandchild with cancer.
Method:
qualitative study, guided by philosophical hermeneutics. Eight grandmothers of children who had finished an oncology treatment participated in this study. Data were collected through interviews, which were recorded, transcribed, and analyzed according to the principles of hermeneutics.
Results:
the grandmothers underwent an experience of multiplied, silent, transformative, and permanent suffering. They believe it is their role to be present, but they recognize their adult children’s independence and self-determination. Grandmothers highlighted that their experience has been very little accessed and considered by health care professionals.
Conclusion:
we recommend including grandparents in the context of care and in additional research.
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01-01-2016
Knowledge of healthcare professionals on the evaluation and treatment of neonatal pain
Revista Brasileira de Enfermagem. 2016;69(3):552-558
Abstract
Knowledge of healthcare professionals on the evaluation and treatment of neonatal pain
Revista Brasileira de Enfermagem. 2016;69(3):552-558
DOI 10.1590/0034-7167.2016690319i
Views0See moreABSTRACT
Objective:
to identify knowledge of healthcare professionals on the management, evaluation and treatment of pain in a neonatal unit in a municipality of Rio de Janeiro.
Method:
descriptive, exploratory study with quantitative analysis. Data were analyzed using the software R. Core Team
Results:
of the 96 healthcare professionals who participated in the study, 42 nursing aides/technicians responded, along with 22 nurses, 20 physicians and 2 physical therapists. The results showed that 40.5% of the nursing aides/technicians, 50% of the physicians and 50% of the physical therapists confirmed that they coordinate/perform/assist in the care of babies’ pain while performing procedures (lumbar puncture, chest tube insertion and central line). There was a significant difference of agreement in relation to the nursing aides/technicians and physicians. Most (69.8%) of the healthcare professionals knew of some non-pharmacological measure effective for relief of acute pain.
Conclusion:
there is a need for an educational intervention program, with participation of those involved, in the process to change professional practice.
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01-01-2016
Moments for hand hygiene in Material and Sterilization Center
Revista Brasileira de Enfermagem. 2016;69(3):546-551
Abstract
Moments for hand hygiene in Material and Sterilization Center
Revista Brasileira de Enfermagem. 2016;69(3):546-551
DOI 10.1590/0034-7167.2016690318i
Views0See moreABSTRACT
Objective:
to characterize the moments when there is a need for hand hygiene (HH) by employees who work in Material and Sterilization Center (MSC).
Method:
we conducted a descriptive cross-sectional study in the MSC of a large hospital, from July to November 2012, in Goiânia, state of Goiás, Brazil. Data obtained through observation of workers, following a previously evaluated and tested checklist.
Results:
to the dirty area, standardized moments of HH were enough. In the clean area, “Extra moments with indication” for HH, resulting from the work process, such as: after disinfecting benches, after verification and inventory of consigned products, before assembling boxes/trays, before loading and unloading the autoclave, before handling and distributing health care products, among others, were necessary.
Conclusion:
the moments of HH in the dirty area coincide with indications of the clinical practice; and, in the clean area, characteristic moments of the work process were captured.
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01-01-2016
The experience of family care in transitional support houses
Revista Brasileira de Enfermagem. 2016;69(3):538-545
Abstract
The experience of family care in transitional support houses
Revista Brasileira de Enfermagem. 2016;69(3):538-545
DOI 10.1590/0034-7167.2016690317i
Views0See moreABSTRACT
Objective:
to present the theoretical model that represents the experience of care in transitional homes of support to families of children in a period of post-transplantation of hematopoietic stem cells.
Method:
grounded theory, performed with 18 participants from three different samples. For analysis, we used the QSR Nvivo10 software.
Results:
we elaborated four categories: living in the transitional support home; experiencing care of children in post-transplantation of hematopoietic stem cells; taking care of the family caregiver; and returning to a new life at home, which interrelate according to the theoretical code of the interactive family.
Conclusion:
this research contributes to understanding the experience of care in transitional support homes of families with children in post-transplantation of hematopoietic stem cells and subsidizes nursing and health actions provided to this population; it also contributes to the development of a hospital discharge guidance and care directed to this clientele.
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01-01-2016
Social representations of nurses on tuberculosis
Revista Brasileira de Enfermagem. 2016;69(3):532-537
Abstract
Social representations of nurses on tuberculosis
Revista Brasileira de Enfermagem. 2016;69(3):532-537
DOI 10.1590/0034-7167.2016690316i
Views0See moreABSTRACT
Objective:
to describe the social representation of nurses on tuberculosis and identify the implications on nursing care.
Method:
qualitative research with the participation of 52 nurses from 23 Basic Health Units of Belém, Pará. A semi-structured interview was conducted with subsequent analysis of the thematic content according to the Theory of Social Representations.
Results:
the social representations of tuberculosis were organized into two categories: infection, evidencing the clinical-epidemiological aspects of the disease, and stigma and prejudice, representing the social aspect. Care is affected by fear – a fact that explains the distance adopted by some nurses when handling ill people.
Conclusion:
the social representations of nurses on tuberculosis remain grounded in fear, leading professionals to keep a certain distance from patients and generating stigma and prejudice, which may affect adherence to treatment.
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01-01-2016
Health care for children and adolescents with HIV: a comparison of services
Revista Brasileira de Enfermagem. 2016;69(3):522-531
Abstract
Health care for children and adolescents with HIV: a comparison of services
Revista Brasileira de Enfermagem. 2016;69(3):522-531
DOI 10.1590/0034-7167.2016690315i
Views0See moreABSTRACT
Objective:
compare the quality of different types of health care for children and adolescents with HIV, in the experience of family members and caregivers.
Method:
a cross-sectional study was conducted with 71 family members and caregivers, using the children’s version of the Primary Care Assessment Tool (PCATool-Brazil). The Mann-Whitney or Student’s t-test and Pearson’s chi-square or Fisher’s exact test were used for the analysis.
Results:
primary care services and, predominantly, specialized HIV services, were identified as the regular health care sources. There were no significant differences in quality, since their scores were close to the ideal level.
Conclusion:
the attributes of these services need to be improved, which would entail reformulating their structural and performance aspects. In addition, it is imperative to recognize primary health care as an integral place for promoting the health of children and adolescents with HIV.
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01-01-2016
Nursing care in Specialized HIV/Aids Outpatient Services
Revista Brasileira de Enfermagem. 2016;69(3):515-521
Abstract
Nursing care in Specialized HIV/Aids Outpatient Services
Revista Brasileira de Enfermagem. 2016;69(3):515-521
DOI 10.1590/0034-7167.2016690314i
Views1See moreABSTRACT
Objective:
to analyze the discourses about the care provided by nurses operating in Specialized HIV/Aids Outpatient Services in four public institutions of the city of Fortaleza, Ceará, Brazil.
Method:
descriptive and exploratory study with a qualitative approach, which used as a method the discourse analysis.
Results:
when titling the “care as negative”, such title came from the analogy proposed by Freud (1912) with the photographic negative, represented by what that care can configure from the unconscious movement, since nurses did not perceive themselves in the care actions developed by supporting the work of other occupational categories, contributing to maintain the ideology of biomedicine.
Conclusion:
it is necessary to justify and theorize a nursing clinical practice from epistemological issues of the profession, in such a way that nurses can understand their relevance within the care provided.
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01-01-2016
Notification of health problems among nursing workers in university hospitals
Revista Brasileira de Enfermagem. 2016;69(3):507-514
Abstract
Notification of health problems among nursing workers in university hospitals
Revista Brasileira de Enfermagem. 2016;69(3):507-514
DOI 10.1590/0034-7167.2016690313i
Views0See moreABSTRACT
Objective:
to identify the health problems of nursing workers and describe their consequences.
Method:
an epidemiological, descriptive study with a quantitative approach. The survey was conducted through the Health Monitoring System for Nursing Workers (SIMOSTE) in three university hospitals in São Paulo within a 12-month period.
Results:
a total of 970 records related to health problems were identified; most of these were related to sick leave, occupational accidents with leave, absences, and occupational accidents without leave, with a predominance of musculoskeletal and respiratory system diseases, infectious and parasitic diseases, and nervous system diseases, among others. A total of 4,161 days of work were lost because of the mentioned health problems.
Conclusion:
the results evidence the need to propose preventive strategies to mitigate and reduce health problems in nursing workers.
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ORIGINAL ARTICLE04-09-2020
Factors associated with the discontinuance of outpatient follow-up in neonatal units
Revista Brasileira de Enfermagem. 2020;73(3):e20180793
Abstract
ORIGINAL ARTICLEFactors associated with the discontinuance of outpatient follow-up in neonatal units
Revista Brasileira de Enfermagem. 2020;73(3):e20180793
DOI 10.1590/0034-7167-2018-0793
Views1See moreABSTRACT
Objectives:
to identify predisposing and enabling factors as well as the health needs associated with the discontinuance of outpatient follow-up of newborns who were hospitalized at neonatal intensive care unit.
Methods:
cross-sectional study, using the behavioral model of health services use. The study was composed of 358 mothers and newborns referred to the outpatient follow-up after discharge. Characterization, perception of social support, postnatal depression, and attendance to appointments data were collected, analyzed by the R software (3.3.1).
Results:
outpatient follow-up was discontinued by 31.28% of children in the first year after discharge. In multiple regression analysis, the chance of discontinuance was higher for newborns who used mechanical ventilation (OR = 1.68; 95%CI 1.04-2.72) and depended on technology (OR = 3.54; 95%CI 1.32-9.5).
Conclusions:
predisposing factors were associated with the discontinuance of follow-up; enabling factors and health needs did not present a significant association. Children with more complex health conditions require additional support to participate in follow-up programs, thus ensuring the continuity of care.
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ERRATUM02-26-2024
ERRATUM
Revista Brasileira de Enfermagem. 2024;77(1):e20160061
Abstract
ERRATUMERRATUM
Revista Brasileira de Enfermagem. 2024;77(1):e20160061
DOI 10.1590/0034-7167.20247701e03
Views2In the article “Nurses in the labor market: professional insertion, competencies and skills”, with DOI number: , published in Revista Brasileira de Enfermagem, 2017;70(6):1220-6, on page 1225:Include before REFERENCES:[…]See more -
REVIEW12-08-2024
Interventions for Strengthening General Self-Efficacy Beliefs in College Students: An Integrative Review
Revista Brasileira de Enfermagem. 2024;77(1):e20230192
Abstract
REVIEWInterventions for Strengthening General Self-Efficacy Beliefs in College Students: An Integrative Review
Revista Brasileira de Enfermagem. 2024;77(1):e20230192
DOI 10.1590/0034-7167-2023-0192
Views0See moreABSTRACT
Objective:
To assess the evidence regarding the effectiveness of interventions aimed at strengthening self-efficacy beliefs in college students.
Methods:
Integrative Review conducted on the Lilacs, PubMed, CinahL, Cochrane Collaboration Databases, Scopus, and PsycInfo databases. The methodological quality of the studies was assessed using tools proposed by the Joanna Briggs Institute, and the results were analyzed descriptively.
Results:
Out of the 10 selected studies, six demonstrated that interventions aimed at strengthening self-efficacy were effective (Levels of Evidence II and III), and four revealed contrary results (Levels of Evidence I and II). Programs aimed at enhancing self-efficacy should include content on positive mental health, psychoeducation strategies, cover a period of eight to twelve weeks, and consider the completion of homework assignments.
Conclusion:
The synthesis of evidence pointed to pathways for building an effective self-efficacy strengthening program to be implemented in universities.
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ORIGINAL ARTICLE05-13-2024
Generalized Resistance Deficits in inmates with hypertension: missing resources that limit health
Revista Brasileira de Enfermagem. 2024;77(2):e20230246
Abstract
ORIGINAL ARTICLEGeneralized Resistance Deficits in inmates with hypertension: missing resources that limit health
Revista Brasileira de Enfermagem. 2024;77(2):e20230246
DOI 10.1590/0034-7167-2023-0246
Views0See moreABSTRACT
Objective:
to understand the Generalized Resistance Deficits of people deprived of liberty with hypertension in a Brazilian prison unit.
Method:
qualitative research, anchored in Salutogenesis, carried out with 38 people with hypertension from a Brazilian prison unit, from February to July 2022, with a semi-structured interview with open-ended questions, whose analysis was thematic, explaining the limitations to health in prison.
Results:
13 Generalized Resistance Deficits were reported, mostly related to the prison environment and, to a lesser extent, to the social group and the individual, respectively. Living in prison for people with hypertension implies living with a high number of Generalized Resistance Deficits, accentuating the movement towards the disease pole.
Final considerations:
knowing Generalized Resistance Deficits allows directing health promotion to support the use of available Generalized Resistance Resources and contributes to the expansion of intersectoral policies.
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ERRATUM06-14-2024
ERRATUM
Revista Brasileira de Enfermagem. 2024;77(2):e2024n2e05
Abstract
ERRATUMERRATUM
Revista Brasileira de Enfermagem. 2024;77(2):e2024n2e05
DOI 10.1590/0034-7167.20247702e05
Views2In the article “Educational technologies used to promote self-care for people with diabetes mellitus: integrative review”, with DOI number: , published in Revista Brasileira de Enfermagem, 2023;76(Suppl 4):e20230049, in the title:Where it read:[…]See more -
ERRATUM06-14-2024
ERRATUM
Revista Brasileira de Enfermagem. 2024;77(2):e2024n2e06
Abstract
ERRATUMERRATUM
Revista Brasileira de Enfermagem. 2024;77(2):e2024n2e06
DOI 10.1590/0034-7167.20247702e06
Views2In the article “Is there scientific relevance to the plot of films and documentaries about eating disorders?”, with DOI number: , published in Revista Brasileira de Enfermagem, 2024;77(1):e20220547, page 7:Where it read:[…]See more -
REVIEW07-29-2024
Profile of scientific production on nursing technology construction, validity and application: a bibliometric study
Revista Brasileira de Enfermagem. 2024;77(3):e20230452
Abstract
REVIEWProfile of scientific production on nursing technology construction, validity and application: a bibliometric study
Revista Brasileira de Enfermagem. 2024;77(3):e20230452
DOI 10.1590/0034-7167-2023-0452
Views1See moreABSTRACT
Objective:
to analyze the profile of scientific production on nursing technology construction, validity and application.
Methods:
this is a bibliometric study, carried out in six databases, based on the Methodi Ordinatio application, arranged in nine stages. To represent the findings, the VOSviewer® software was used.
Results:
346 studies were identified, obtained from BDENF, CINAHL, EMBASE, LILACS, PubMed/MEDLINE, Scopus and Web of Science. There was a predominance of the English language, and 20% of the authors hold more than 25% of studies. Only two journals account for 25% of studies in the period studied. Twenty-six studies were selected for the InOrdinatio classification. Nursing Process (23%) stood out among the studies. The most produced technology was software (27%), and 50% of works describe construction and validity.
Conclusions:
there is an emphasis on the creation of educational technologies, especially information technology. The data demonstrates opportunities for future research in the area.
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ORIGINAL ARTICLE01-10-2024
Inventory of ethical problems in mobile pre-hospital care
Revista Brasileira de Enfermagem. 2024;77:e20230539
Abstract
ORIGINAL ARTICLEInventory of ethical problems in mobile pre-hospital care
Revista Brasileira de Enfermagem. 2024;77:e20230539
DOI 10.1590/0034-7167-2023-0539
Views1See moreABSTRACT
Objective:
to construct and validate the content of an inventory of ethical problems experienced by nurses in mobile pre-hospital care.
Method:
a psychometric approach study, developed with the following stages: (1) instrument construction through a theoretical matrix based on deliberative bioethics, scoping review and online qualitative research; (2) content validity by judges; (3) pre-testing with Mobile Emergency Care Service nurses in various Brazilian states. For content validity analysis, the Content Validity Ratio was calculated (CVR>0.45 for judges and CVR>0.35 for the target population).
Results:
the instrument had 44 items, distributed across four dimensions.
Final considerations:
the constructed instrument presented sources of evidence of content validity, providing good psychometric measurements and constituting a useful tool for nurses’ practice in the pre-hospital setting.
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REVIEW12-05-2019
Financial-patrimonial elder abuse: an integrative review
Revista Brasileira de Enfermagem. 2019;72:328-336
Abstract
REVIEWFinancial-patrimonial elder abuse: an integrative review
Revista Brasileira de Enfermagem. 2019;72:328-336
DOI 10.1590/0034-7167-2018-0703
Views0See moreABSTRACT
Objective:
to analyze the available evidence in the nursing literature about financial-patrimonial elder abuse.
Method:
integrative review of articles indexed in the databases CINAHL, Scopus, Web of Science, LILACS and MEDLINE, from 2007 to 2017. The combination of controlled and uncontrolled descriptors was used in Portuguese, English and Spanish.
Results:
15 studies developed in seven countries were included. In the thematic analysis, three categories emerged: epidemiological data, risk factors and institutions providing services to the elderly. The occurrence of this type of violence concomitantly to the other subtypes was highlighted among the most frequent.
Final considerations:
the literature points to important epidemiological data, risk factors and characteristics of this type of violence, including within institutions providing services to the elderly, in different countries, essential aspects for structuring and rethinking public policies for protection and appreciation of the elderly.
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ORIGINAL ARTICLE12-05-2019
Quality of life, burden, family emotional support: a model for older adults who are caregivers
Revista Brasileira de Enfermagem. 2019;72:169-176
Abstract
ORIGINAL ARTICLEQuality of life, burden, family emotional support: a model for older adults who are caregivers
Revista Brasileira de Enfermagem. 2019;72:169-176
DOI 10.1590/0034-7167-2018-0439
Views0See moreABSTRACT
Objective:
To investigate associations between quality of life, sex, age, burden, and nature of emotional support available in the family in older adults who are caregivers of older relatives.
Method:
Cross-sectional and correlational study on 148 caregivers gathered in public and private healthcare services, who were subjected to psychological measures of quality of life, burden, exchange of emotional support, sex, and age. Data were analyzed using Chi-square, Fisher’s exact test and path analyses (p < 0.05).
Results:
A total of 77% women, average age of 69.7 years. There were significant associations between exchange of support and burden due to the provided assistance, being a woman and satisfaction with the received support, satisfaction with the received support and burden, burden and quality of life, and satisfaction with the received support and feeling of burden due to the provided support.
Conclusion:
Satisfaction with the received emotional support moderate the association between sex and burden, and such moderate the association between satisfaction with emotional support and perceived quality of life.
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ORIGINAL ARTICLE11-26-2022
Vulnerability and quality of life of older persons in the community in different situations of family care
Revista Brasileira de Enfermagem. 2022;75:e20210034
Abstract
ORIGINAL ARTICLEVulnerability and quality of life of older persons in the community in different situations of family care
Revista Brasileira de Enfermagem. 2022;75:e20210034
DOI 10.1590/0034-7167-2021-0034
Views0See moreABSTRACT
Objective:
to correlate socio-contextual aspects, physical vulnerability and quality of life of older persons in the community in different situations of family care.
Methods:
epidemiological, a cross-sectional and analytical study, with elderly people in the community (n=769), with application of the instruments: Vulnerable Elders Survey-13 (VES-13), World Health Organization Quality of Life for Older Persons (WHOQOL-OLD) and the World Health Organization Quality of Life (WHOQOL-BREF); and socio-contextual data questionnaire.
Results:
the population assessed presented an average of regular quality of life in both the WHOQOL-BREF and the WHOQOL-OLD. Older non-vulnerable persons (62.2%) and those with close family contact (82.6%) have a better quality of life than the vulnerable (p<0.0001).
Conclusion:
lower quality of life scores and more distant families are related to vulnerable elderly people; thus, the assessment of family proximity and physical vulnerability of older persons is shown to be an important factor in improving quality of life.
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03-19-2021
Validity and reliability of Kessler Psychological Distress Scale for Brazilian elderly: a cross-sectional study
Revista Brasileira de Enfermagem. 2021;74:e20200365
Abstract
Validity and reliability of Kessler Psychological Distress Scale for Brazilian elderly: a cross-sectional study
Revista Brasileira de Enfermagem. 2021;74:e20200365
DOI 10.1590/0034-7167-2020-0365
Views0See moreABSTRACT
Objective:
to verify the validity and reliability of the Psychological Distress Scale for screening mental distress.
Methods:
a cross-sectional study with 75 elderly people. Psychological Distress scale and Self Reporting Questionnaire were used. Criterion validity was verified using Spearman’s correlation and diagnostic accuracy measures. Cronbach’s alpha coefficient was used to investigate reliability.
Results:
the total internal consistency of the Psychological Distress Scale was α=0.844. Concurrent validity between this instrument and the Self Reporting Questionnaire was ρ=0.722 (p<0.001). The best cut-off point for screening mental distress among elderly people was a total score greater than 14, with sensitivity equal to 75.47% and specificity equal to 85.0%.
Conclusions:
the scale was robust for screening mental distress, given its high reliability, in terms of homogeneity, and adequate criterion validity, whose best cut-off point for screening was a score greater than 14.
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ORIGINAL ARTICLE12-05-2019
Functional capacity assessment of long-lived older adults from Amazonas
Revista Brasileira de Enfermagem. 2019;72:49-55
Abstract
ORIGINAL ARTICLEFunctional capacity assessment of long-lived older adults from Amazonas
Revista Brasileira de Enfermagem. 2019;72:49-55
DOI 10.1590/0034-7167-2017-0798
Views0See moreABSTRACT
Objective:
To evaluate the functional capacity of long-lived older adults from Amazonas.
Method:
A cross-sectional epidemiological study was carried out with 116 older adults aged 80 years or older, registered in a primary health care unit in Belém, in the state of Pará, Brazil. The Functional Independence Measure (FIM) was used for functional capacity assessment and the Mini-Mental State Examination (MMSE) for cognitive screening. Univariate and bivariate analyses were carried out, in addition to the Pearson’s chi-square test.
Results:
The older adults presented modified independence in the self-care, sphincter control and locomotion dimensions, and needed supervision for mobility/transfers. In mobility, men presented complete independence. Modified independence was found in the 80-89 age group. It was observed that, the lower the education level, the worse the cognitive performance.
Conclusion:
In spite of their advanced age, long-lived older adults still present functional capacity for activities of daily living, even though they required supervision for high energy expenditure tasks, such as mobility and transfers.
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ORIGINAL ARTICLE12-05-2019
Self-care activities, sociodemographic variables, treatment and depressive symptoms among older adults with Diabetes Mellitus
Revista Brasileira de Enfermagem. 2019;72:22-29
Abstract
ORIGINAL ARTICLESelf-care activities, sociodemographic variables, treatment and depressive symptoms among older adults with Diabetes Mellitus
Revista Brasileira de Enfermagem. 2019;72:22-29
DOI 10.1590/0034-7167-2017-0579
Views0See moreABSTRACT
Objective:
to analyze the association between self-care activities of older adults with Type 2 Diabetes Mellitus (DM) and sociodemographic variables, type of treatment and depressive symptoms.
Method:
inferential and cross-sectional study, with 121 older adults with Type 2 DM in ambulatory care. We used a questionnaire for characterization of sociodemographic and health, questionnaire self-care activities with DM, Mini Mental State Examination and Geriatric Depression Scale. The association of variables was used (Fisher’s exact test) and for comparing the means (Student’s t-test and analysis of variance).
Results:
The mean age was 68.1 years, the majority were women (57.2%), retired (71.9%) and married (65.3%). The highest averages were for the activities: “to dry the spaces between the toes, after washing them” and smaller averages for “exercise”.
Conclusion:
In spite of high average for self-care activities, there is a need for enhanced performance and compliance to them.
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12-04-2023
Nursing and the Sustainable Development Goals (SDGs): An Essential Commitment
Revista Brasileira de Enfermagem. 2023;76(6):e760601
Abstract
Nursing and the Sustainable Development Goals (SDGs): An Essential Commitment
Revista Brasileira de Enfermagem. 2023;76(6):e760601
DOI 10.1590/0034-7167.2023760601
Views0The Sustainable Development Goals (SDGs) are a global initiative launched by the United Nations (UN) in September 2015 as part of the 2030 Agenda for Sustainable Development, whose objectives summarize a universal call to action to end poverty, protect the environment and ensure that all people have access to opportunities and well-being, all in an […]See more -
ORIGINAL ARTICLE06-04-2021
Information demands from families of children with Autism Spectrum Disorder
Revista Brasileira de Enfermagem. 2021;74(5):e20200642
Abstract
ORIGINAL ARTICLEInformation demands from families of children with Autism Spectrum Disorder
Revista Brasileira de Enfermagem. 2021;74(5):e20200642
DOI 10.1590/0034-7167-2020-0642
Views0See moreABSTRACT
Objective:
to identify the information demands of families of children with Autism Spectrum Disorder.
Method:
this is a qualitative study conducted through semi-structured and audio-recorded interviews with 55 family members, in the states of Paraná, Ceará, and Macapá, between September 2018 and September 2019. Thematic category analysis and Qualitative Data Analysis Software resources were used for data organization.
Results:
it was identified that families need information regarding the characteristics of Autism Spectrum Disorder (definition, cause, possibility of cure, prognosis and the probability of having another child with Autism Spectrum Disorder); child’s routine and behavior; future rights and expectations.
Final considerations:
information demands are relevant to support professionals, health managers and other services in health care organization to support families of children with autism.
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