The family of the child with special health care needs and their social relationships - Revista Brasileira de Enfermagem

ABSTRACT

Objectives:

to identify aspects that can influence the types of bonds developed in the social support network of family members of children with special health care needs.

Methods:

qualitative research conducted through interviews with 15 family members/guardians in the city of Rio de Janeiro, from January to February 2020. Sanicola’s theoretical-methodological framework and Bardin’s thematic analysis technique were used.

Results:

social distancing, lack of responsibility for coordinating care, lack of supplies and lack of individualized care were weaknesses found in the families’ social relationships. However, the bonds were strengthened by the relationship of familiarity and availability of professionals in the care of children with special health needs.

Final Considerations:

understanding the configuration of primary and secondary social networks and the types of support offered can improve the care of children and strengthen bonds that provide security for families.